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We have resisted this form of treatment for as long as we could. Been told by 3 heme/onc this is what HAS to happen if he wants any chance of longevity. His sister is a 100% match and he is grateful for her. Not looking forward to this but keeping our eyes on the prize of getting to the other side of this.
Don't fear the treatment, fear the disease. support blood donations and "be the match".
Chemo/radiation and other drugs given prior to transplant day were rough. Fevers/accelerated heart rate/low BP/mucocytis. You all will experience highs and lows. After transplant, slowly started to see positive signs of improvement. Walking helped in the healing process. Important that you all quarantine during first 100 days to minimize any infection/illness. It’s a journey but you can do it, we looked at is as a labor of love. Good luck, rooting for all of you.
Oh- you lose all your childhood immunity but you get new vaccinations within the next two years following SCT. At least that’s what has happened to me. The chemo right before transplant destroys it.
Transplants have really improved over the years. My 1 yr anniversary was May 4 this year. Had donor too. 100% match. Getting sibling is even better!!
During actual transplant:eat ice chips like it’s going out of style. Use Magic Mouthwash multiple times/day. This can lessen the severity of mucositis.
It will last abt 30 minutes. Very anti-climatic but the 1st 100 days are very important. Most Allogenic sct patients stay in hospital for 3-4 weeks. It’s where you want to be during this stage. Timeframe when donor bone marrow can be rejected by you, the host (Graph vs Host) .
Best of luck to your boy!!!
An allogeneic (donor) stem cell transplant can be a significant procedure with various aspects to consider:
The Good:
- Potential for Cure: It can be a curative treatment for leukemia, especially if other treatments have failed.
- Matched Donor: A closely matched donor can improve the chances of success.
The Bad
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