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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
Keene, NH

I feel its very important to have one or all of these. They are available to you for free and each State is different, so ensure you obtain the correct forms for where you reside. Often, your doctors office or the local hospital will have them if you cannot locate them on line. I feel it is only fair to our loved ones to be aware and know what our wishes are. More importantly, to have a legal document to present to medical personnel giving them direction as to what we want, not what they think… read more

April 3, 2025
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Answer Summary

Members expressed strong agreement that having advance directives, living wills, and healthcare power of attorney documents is essential, with... Read more

Members expressed strong agreement that having advance directives, living wills, and healthcare power of attorney documents is essential, with many sharing they completed theirs before or shortly after their diagnosis to provide peace of mind and clear guidance for loved ones. Several members emphasized practical steps like ensuring designated representatives have copies, bringing documents to any procedure requiring anesthesia, updating them as circumstances change, and having honest conversations with family about end-of-life wishes to remove the burden of difficult decisions from loved ones during emotional times. A recurring theme was the relief and comfort that comes from knowing one's wishes are legally documented and clearly communicated, with one member sharing how her friend's detailed advance directive made carrying out her final wishes far easier and less emotionally haunting.

A MyLeukemiaTeam Member

When I was diagnosed, the nurses at the hospital urged me to complete it. Before filling it, I had a really conversation with my parents. (Well mom, as you can only have 1... and I knew they would be a unified front. Although it is a legal document, frequently they can complete it bed side (at least here in NY) just be aware of your rights bc it does vary state to state.... the LLS are good about having resources for the public!

April 5, 2025
MyLeukemiaTeam

A medical power of attorney is a crucial legal document that allows someone you trust to make healthcare decisions on your behalf if you become unable to make them yourself. This person can be called your healthcare agent, proxy, surrogate, representative, or patient advocate. They must follow any guidelines you specify Show Full Answer

A medical power of attorney is a crucial legal document that allows someone you trust to make healthcare decisions on your behalf if you become unable to make them yourself. This person can be called your healthcare agent, proxy, surrogate, representative, or patient advocate. They must follow any guidelines you specify, but can make important decisions about your medical treatment, including life support options. Getting these documents in place early is important for having control over your medical care. Store them somewhere easily accessible like a fireproof box or home safe, rather than a bank safety deposit box which may be hard for loved ones to access. You can get help setting these up by asking your oncology care team for a referral to a social worker or lawyer who can assist with the proper documentation for your state.

April 3, 2025
A MyLeukemiaTeam Member

I already have a Trust for my three Daughters

April 16, 2025
A MyLeukemiaTeam Member

Good morning Soultime,
I was out in my garden a few minutes ago and its freezing, I am not sure if CLL sufferers feel the cold more than others., Today its windy and down to 8C
Mind that's not as cold as when I was in Norway teaching winter warfare survival
and it was down to -40c
Keep safe xx

April 16, 2025
A MyLeukemiaTeam Member

Best gift you can give your loved ones. Takes a pile of stress out of their lives--they just follow the instructions.--jmb

April 14, 2025

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