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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How do you deal with the Anxiety and fear of the disease coming back after you reach remission?

A MyLeukemiaTeam Member asked a question 💭
Westminster, MD
April 27, 2025
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Reactions
A MyLeukemiaTeam Member

I gat AMML and in all honesty I don’t spend a second of my life on what if’s .
If shi… happens it happens anyway , than you can deal with it.
there is nothing what you can do others than live your life to the fullest time is to short to waiste on thoughts .enjoy every moment focus on the things that bring you joy.

April 29, 2025
A MyLeukemiaTeam Member

I know that feeling.. I think that hope and faith have a great deal to do with it. Sounds cliche but really it matters. During treatment you hope it’s working and you have faith that it will. Life is precious so enjoy it. You can live a long time with CLL ..

April 28, 2025
A MyLeukemiaTeam Member

I realize that there is no cure for leukemia. I know that medication can control the illness but the bad cells can mutate and control can be lost. The good news is that new medication are being tested or approved every year. The new medication use different means to control the bad cells. This illness last a long time and so do our lives. I am happy and healthy and I hope you can have a life like mine. Celebrating Long Life (CLL)

April 28, 2025
MyLeukemiaTeam

It's completely normal to feel anxiety about leukemia returning after remission. Many people experience these feelings during follow-up blood tests and appointments. Common symptoms of this anxiety can include restlessness, difficulty focusing, racing heart, trouble sleeping, and feeling like you've lost control.

Breathing Show Full Answer

It's completely normal to feel anxiety about leukemia returning after remission. Many people experience these feelings during follow-up blood tests and appointments. Common symptoms of this anxiety can include restlessness, difficulty focusing, racing heart, trouble sleeping, and feeling like you've lost control.

Breathing exercises and meditation have helped many manage these feelings. These techniques can help slow racing thoughts and bring focus back to the present moment, helping you feel more grounded when worry takes over. One helpful approach is focusing on what you can control while letting go of what you can't. Some find relief through practical activities like organizing their home, while others benefit from opening up to trusted people about their fears. Remember that your oncologist will continue monitoring you through regular blood tests to ensure the cancer stays in remission, which provides an important safety net.

As one person who reached remission shared, they learned to "not sweat the little stuff" and instead focus on enjoying everything - both good and bad - while appreciating time with loved ones.

April 27, 2025

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