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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 30, 2025
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A MyLeukemiaTeam Member

Hallo Seelenzeit12, That sounds good. So everything was fine on Wednesday. That makes me very happy for you.
Kind regards

June 1, 2025
A MyLeukemiaTeam Member

Hi Tricia and welcome to a wonderful group of warriors:):) I have had CLL for 9 plus years...thankfully...no treatments and no major spikes in my counts. The primary symptom I have had from the beginning is the darn fatigue, I sleep 12 hrs a night and often have to lay down for a nap to gain energy back.
I have a couple of lymph nodes that ebb and flow, but never stay enlarged. As we all are so very different, it really is hard to put a time line on symptoms. Just continue to live your life as you have and if something out of the norm is of concern to you, give your doctor a call.

May 31, 2025
A MyLeukemiaTeam Member

I was your age when I was told I had CLL. My doctor told me not to worry until my white blood cell count reached a special number which he increased every 3 months? I also did not know I was supposed to have low energy so I continued to visit the gym and jog? What I was missing was information to help me decide which steps to take for better health. After 10 months I had 75,000 WBC and not problems. I requested medication to prevent organ damage from bad cells. Medication does not cure leukemia. medication only controls the bad cells by inactivating (killing?) bad cells. The medication is expensive $15500 per month and a co-payment of $4000 is possible. My medical people applied for a grant from Leukemia Society and it pays the co-payment. I have learned much reading comment here and using the resource section for information. I understand how the medication works "BTK Inhibitor" and newer medications which use "BCL2" to control bad cells. Medication works but I still have low energy? Medication has possible ill affects but I was not affected with any ill affects. I read CURE magazine 9/24 and it mention new ill affects like high blood pressure or brain fog? I am waiting for this to happen? I hop you are eating healthy and exercising which does benefit people who have leukemia. This illness is a long term healthy issue and you may have it for 10, 20 or long years? I hope your summer is healthy and happy. Celebrating Long Life (CLL)

May 30, 2025
MyLeukemiaTeam

High white blood cell counts (leukocytosis) don't always indicate a serious condition. While you may not have symptoms now, some common signs to watch for include:

- Fever
- Coughing
- Sinus congestion
- Sore throat
- Changes in urination
- Diarrhea It's important to note that your test results may be the only sign of an Show Full Answer

High white blood cell counts (leukocytosis) don't always indicate a serious condition. While you may not have symptoms now, some common signs to watch for include:

- Fever
- Coughing
- Sinus congestion
- Sore throat
- Changes in urination
- Diarrhea It's important to note that your test results may be the only sign of an abnormal blood count. However, if you develop symptoms related to low blood counts, they may include:

- Fatigue
- Weakness
- Shortness of breath
- Easy bruising
- Excessive bleeding from minor cuts
- Bleeding from nose or gums

Regular monitoring of your blood counts with your healthcare provider is essential to track any changes and adjust treatment if needed.

May 30, 2025

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