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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have had CLL symptoms for 7 years now. Just got bumped from stage 0 to stage 1. How much longer do I realistically have?

A MyLeukemiaTeam Member asked a question 💭
Chittenango, NY
June 20, 2025
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A MyLeukemiaTeam Member

I have discovered that people who are team members have been ill for 10, 20, or more years. This to me means our illness is a long term issue. I think the past survival rate should be up dated to reflect the new survival rate? There are many medications for all the different luekemias so this increases the a person's years. Maybe 15 years ago the posted survival years was possible but I think the rate should be increased? Celbrating Long Life (CLL)

June 21, 2025
A MyLeukemiaTeam Member

that is the $64,000. question isn't it. Docs are no help. I tend to look at the NIH website to try to sort it out. I feel like the stats are out there, but not shared sadly. I think alot of us just backburner it and try to live for today. Good luck.

July 7, 2025
MyLeukemiaTeam

The current five-year survival rate for CLL is 85.7%, meaning about 86 out of 100 people diagnosed with CLL are expected to live 5 or more years. However, it's important to understand that these statistics are based on past data and don't reflect newer, improved treatments that are available today.

Your individual outlook Show Full Answer

The current five-year survival rate for CLL is 85.7%, meaning about 86 out of 100 people diagnosed with CLL are expected to live 5 or more years. However, it's important to understand that these statistics are based on past data and don't reflect newer, improved treatments that are available today.

Your individual outlook may be better than these statistics suggest, especially since treatments are constantly improving. Several factors influence your individual prognosis, including age and specific characteristics of your condition. Being at Stage 1 puts you in the intermediate risk group, but this doesn't mean you can't live many more years with proper management.

The best person to discuss your specific prognosis with is your doctor, as they understand your unique situation and can take into account all relevant factors affecting your outlook.

June 20, 2025

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