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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Have p17 and 53 diagnosed 2017. Blood levels are out of normal range.

July 8, 2025
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A MyLeukemiaTeam Member

Just 4 infusions. 1 a week. Thanks for your concern.

July 15, 2025
A MyLeukemiaTeam Member

Thank you Robert very helpful information. Seeing my oncologist today will discuss options. Peace

July 10, 2025
A MyLeukemiaTeam Member

I think you should establish limits of when you want medication. I decided that I did not want to have damaged organs so I requeted medication at 75,000 WBC. Today I have medication and my WBC count is 7,100. The pills are expensive $15500 per month but there are grands that can pay the co-payment. I think organ damage and pain would be the time to start thinking about damaged organs and damaged life versus medication and repair of organs and life?

July 9, 2025
A MyLeukemiaTeam Member

Because of my pain and high risk 17p and 53 he ordered a petscan/ct to get a better picture of what we are dealing with. Also, will be getting 4x weekly doses of rituximab infusions.

July 15, 2025
A MyLeukemiaTeam Member

Hi Anthony. What did your oncologist say last week about your spleen and pain?

July 13, 2025

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