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My symptoms include normal ones but mainly being very tired and skin issues. Some of the other symptoms could also be due to my age - 76. My night sweats are not horrible but I am quite warm most of the time - compared to others around me. The only treatment I have had are ivig infusions for the past 4 months. My blood work every 4 weeks is low - hi white cell - but otherwise maintaining the same numbers for years! Now my hema/onc is considering I start chemo. Not sure which one yet. My… read more
Bev, as stated I found out this August that I do not have CLL I have Chronic Neutrophilic Leukemia, it was not until 2025 when i found out this August that my cancer wasn't CLL. I also removed my name as Team Leader because I also know nothing other than the name of my rare cancer other than it usually occurs after 50 years of age. Comes with all kinds of symptoms' that I appear to be having them all. I just put my faith in my God and know he is the only one that knows when my time is up. When I am able to be active , I do enjoy getting out of the house. However when I am not feeling well I don't, i find a book to read, or my games on my iPad and I read a lot.
The decision to start chemotherapy for CLL is highly personalized. Since CLL is a slow-growing leukemia, many patients can safely delay treatment using a "watch and wait" approach, especially if their symptoms are manageable and blood counts are relatively stable, as in your case.
The key factors that help determine when Show Full Answer
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