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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
San Juan Capistrano, CA
October 12, 2025
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MyLeukemiaTeam

The reappearance of IDH1 after being in remission could indicate a potential relapse, which means cancer cells may be returning after a period of improvement. This is why regular follow-up visits with healthcare providers are crucial for monitoring the disease.

It's important to understand that remission doesn't always Show Full Answer

The reappearance of IDH1 after being in remission could indicate a potential relapse, which means cancer cells may be returning after a period of improvement. This is why regular follow-up visits with healthcare providers are crucial for monitoring the disease.

It's important to understand that remission doesn't always mean permanent cure. Some cancer cells can remain in the body even after successful treatment, which is why doctors often recommend consolidation or maintenance therapy to prevent relapse. The next steps typically involve:

• Additional testing to confirm the extent of the IDH1 presence
• Possible adjustment of treatment plans
• More frequent monitoring
• Potential consolidation therapy to target remaining cancer cells

Please discuss these findings with your healthcare team, as they can provide the most accurate interpretation based on your specific medical history and complete test results.

October 12, 2025
A MyLeukemiaTeam Member

I think basically any treatment or medication only "controls" those bad cells until they mutate. Once the cells mutate control is lost and the whole process has to be repeated to control the mutated cells. The word remission is outdated and confusing because it does not leave room to explain why the bad cells are back for more trouble? The use of the word control means the bad cells have been stopped or delayed as things look good and healthy. The good news is that there is other means to control those bad cells that uses a different ways to attack those bad cells and it will work until the bad cells mutate and control is lost.

October 21, 2025

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A MyLeukemiaTeam Member asked a question 💭
San Juan Capistrano, CA