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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 22, 2025
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A MyLeukemiaTeam Member

Still on watch & wait (praying it'll stay this way for a long long time) but this issue does make me a little anxious when thinking of it. I'll say 4.

October 27, 2025
A MyLeukemiaTeam Member

Thanks for the response, I hope all is well with you and yours.

October 28, 2025
A MyLeukemiaTeam Member

The high cost of calquece and the political chaos has me spooked:5

October 23, 2025
MyLeukemiaTeam

Concerns about medication access are very common among people with leukemia. The high costs of treatments like TKIs can create significant anxiety. Studies show that when people struggle to afford their medications, it can lead to:

• Skipping or missing doses
• Delayed treatment starts
• More hospital visits
• Worse health Show Full Answer

Concerns about medication access are very common among people with leukemia. The high costs of treatments like TKIs can create significant anxiety. Studies show that when people struggle to afford their medications, it can lead to:

• Skipping or missing doses
• Delayed treatment starts
• More hospital visits
• Worse health outcomes
• Increased stress and depression While it's not possible to assign a universal fear rating, many factors can affect medication access including:

• Insurance coverage limitations
• High out-of-pocket costs
• Managing multiple medications
• Mental health challenges
• Social and personal barriers

The good news is that resources exist to help. Cancer care teams can often connect patients with financial assistance programs, copay cards, and other support services to help ensure consistent access to vital medications.

October 22, 2025
A MyLeukemiaTeam Member

It’s probably a little dark- but if we no longer have access to medications for whatever reason- then I will just enjoy my last few days. I have no immune system> get mine from a bottle or a bag, have epilepsy and so I could go into status epilepticus and that could end me so the cancer would be the slowest killer.

December 16, 2025

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