Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
Lees Summit, MO

I have recently been diagnosed with CML

November 16, 2025
 · 
Reactions
A MyLeukemiaTeam Member

My mother would tell us we were too poor to afford this luxury? I may have CLL but I had not had this ill affect. I did read an article that it was discovered the sinus is a place excess white blood cells collect to combat bad things we may breath as part of our immune system. I think your nose nerves that detect smells may have been affected? Most of us get itchy skin with the nervous cells being attacked from those bad white blood cells. Those bad cells do travel all over our body and the nervous system can be attacked.

November 18, 2025
MyLeukemiaTeam

Are you experiencing phantom chemical smells after being diagnosed with CML?

Changes in your sense of smell, including smelling things that aren't there, can occur as a side effect of CML treatments. Tyrosine kinase inhibitors (TKIs), which are the most common treatment for CML, can cause changes in your sense of smell and Show Full Answer

Are you experiencing phantom chemical smells after being diagnosed with CML?

Changes in your sense of smell, including smelling things that aren't there, can occur as a side effect of CML treatments. Tyrosine kinase inhibitors (TKIs), which are the most common treatment for CML, can cause changes in your sense of smell and taste.

Chemotherapy, if used as part of your treatment plan, can also lead to similar changes in how you smell and taste things.

If you're experiencing these phantom chemical smells, it's important to mention this to your cancer care team. They can help determine if it's related to your treatment and work with you to manage this side effect. They may be able to adjust your medications or suggest ways to help you feel more comfortable.

November 16, 2025

Related Questions

View All
A MyLeukemiaTeam Member asked a question 💭
New Braunfels, TX