When I was 71 I was told I had CLL. I requested medication after 10 months of seeing my WBC count increase to 75,000. I had read about the different medications and the different methods used to "control" those bad cells. I think doctors do not prescribe medication because a pill can cost $125. My doctor got me a co-pay grant for $4,000 to pay my co-pay of $3,400. All medications list odd ill affects but my first year no ill affects. The second year I had a strange cough and my doctors could not help me. After 7 months of coughing I stopped taking my pills and the cough stopped. I just began the pills again at 50% dose and no cough. I read the paper work and cough, high blood pressure are now listed as possible ill affects. All my blood test indicate 100% normal and my WBC count is 7,300. I know the medication will work until the cells mutate and control is lost. I know the medication works because of the BTK inhibitor that attaches to the bad cells and inactivates the bad cells. This medication does not effect good cells or organs. When I got the medication I had learned the medication was good for 3 to 5 years. A new study has determined the medication is good for 10 to 20 years. I realize our illness is a long term issue with or without medication. We choose what we want to do to help our health. I hope you can find the information you require to make a healthy choice. I hope your holidays are happy and healthy. Celebrating Long Life (CLL)
When are you considered in remission from ALL leukemia?
You're generally considered in remission from acute lymphoblastic leukemia (ALL) when specific criteria are met. Complete remission means that cancer cells can no longer be detected in your body and you have no remaining leukemia symptoms.
The medical criteria for Show Full Answer