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Been 1 year since I finished treatment. Blood test are still in normal range as of today.
I have CLL . Was at stage 4 when diagnosed 2 years ago.

January 8
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A MyLeukemiaTeam Member

It depends how your weight was in excess and if your activity is the cause of your loss? If your weigh loss is high from low activity those bad cells are being fed very well. I think some people can become depressed and this will effect the amount of food they eat? I hope you find a solution to your weight loss?

January 11
A MyLeukemiaTeam Member

Me also thanks. I have lost almost 3 pounds in a few weeks. Don't know why. Im not a vegetarian.
Just concerning to me. Blood test on January 8th shows things are still in the normal range but some have gone to the tipping point.

January 28
MyLeukemiaTeam

How much weight loss per month is dangerous with CLL?

Unintended weight loss is a common concern for people with CLL, even after treatment. While there isn't a specific "dangerous" amount of weight loss per month that applies to everyone, losing 9 pounds over 4 months (about 2.25 pounds per month) warrants attention Show Full Answer

How much weight loss per month is dangerous with CLL?

Unintended weight loss is a common concern for people with CLL, even after treatment. While there isn't a specific "dangerous" amount of weight loss per month that applies to everyone, losing 9 pounds over 4 months (about 2.25 pounds per month) warrants attention, especially since you're not trying to lose weight.

Weight loss can be a B symptom of CLL, which may indicate disease activity. Other B symptoms include night sweats and fever. However, since your blood tests are still in the normal range, this is a positive sign.

It's important to discuss this weight loss with your oncologist because:

* Unintended weight loss can signal changes in your CLL status
* It may affect your overall strength and ability to tolerate future treatments if needed
* Your doctor can check for other causes like anemia or appetite changes related to CLL

Many members have shared similar experiences with weight loss, noting difficulty maintaining appetite even after treatment. Your healthcare team can help determine if this weight loss is concerning in your specific situation and suggest strategies to maintain a healthy weight, such as working with a nutritionist or addressing any underlying issues.

Since you're a year post-treatment with normal blood work, this is encouraging, but keep monitoring your weight and report any continued loss to your doctor.

January 8
A MyLeukemiaTeam Member

This is good news and it will help other people to know that it is possible to have a treatment and be normal. Now don't go wild and try to behave yourself even though you are a super hero.

January 30

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