Answer Summary
Members rallied around someone worried that their current leukemia medication wasn't working after three different treatments, offering... Read more
Yes, Kelly, when one course of therapy becomes ineffective, they switch things up. Please don’t get discouraged. The doctors have lots of tricks in their bags! ❤️
Medication works until the ells mutate and "control" is lost. Each medication used a totally different method to control those bad cells. There are many different medications so you will be on a new medication soon. I take Brukinsa which is normally good for 10 to 20 year. In the past it was only listed good for 3 to 5 years but the failure rate was only 4%. There are many medications approved every year and many medications that are tested every year. Last year I had read that two medications are now given at the same time which use different methods to control those bad cells. I had an ill affect which was a cough for 7 months. I stopped my medication and the cough stopped. I read my new paperwork and a cough is listed as an ill affect? I now take my medication at 50% does and my blood test is 1005 normal for everything in my blood and the WBC count is 7,300. I learned about the medications BTK inhibitor. There is also the BCL2, BCL-xl medications. I hope your doctor can talk to you. My doctor has not told me anything but he did approve my prescription?
@ CoreyDegenstein, thank you so much! @ Soultime12, he said he had already tried me on three meds that's why he was going to refer me to Saint Judes in St. Louis. He said he was going to wait until my BCR count came back to see if it has decreased.
I was diagnosed with ALL February 2025 presently in the maintenance phase.
Kelly, there are numerous options other than the ones you started with. have faith that they will find what works for you. May God bless you.