Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 12
 · 
Reactions

Answer Summary

Members rallied around someone worried that their current leukemia medication wasn't working after three different treatments, offering... Read more

Members rallied around someone worried that their current leukemia medication wasn't working after three different treatments, offering reassurance that doctors have many more options available and that finding the right medication often takes time and adjustment. Several members shared their own experiences with medication changes, including one who reduced their dose to 50% with great results, another who takes medications just three times a week after genetic testing revealed slow metabolism, and others who emphasized that cells can mutate and require different treatment approaches over time. A recurring theme was steadfast encouragement to stay hopeful, trust the referral process to specialists like Saint Jude's, and lean on both medical expertise and faith to navigate the uncertainty of finding what works best for each unique body.

A MyLeukemiaTeam Member

Yes, Kelly, when one course of therapy becomes ineffective, they switch things up. Please don’t get discouraged. The doctors have lots of tricks in their bags! ❤️

January 13 (edited)
A MyLeukemiaTeam Member

Medication works until the ells mutate and "control" is lost. Each medication used a totally different method to control those bad cells. There are many different medications so you will be on a new medication soon. I take Brukinsa which is normally good for 10 to 20 year. In the past it was only listed good for 3 to 5 years but the failure rate was only 4%. There are many medications approved every year and many medications that are tested every year. Last year I had read that two medications are now given at the same time which use different methods to control those bad cells. I had an ill affect which was a cough for 7 months. I stopped my medication and the cough stopped. I read my new paperwork and a cough is listed as an ill affect? I now take my medication at 50% does and my blood test is 1005 normal for everything in my blood and the WBC count is 7,300. I learned about the medications BTK inhibitor. There is also the BCL2, BCL-xl medications. I hope your doctor can talk to you. My doctor has not told me anything but he did approve my prescription?

January 12
A MyLeukemiaTeam Member

@ CoreyDegenstein, thank you so much! @ Soultime12, he said he had already tried me on three meds that's why he was going to refer me to Saint Judes in St. Louis. He said he was going to wait until my BCR count came back to see if it has decreased.

January 12
A MyLeukemiaTeam Member

I was diagnosed with ALL February 2025 presently in the maintenance phase.

January 15
A MyLeukemiaTeam Member

Kelly, there are numerous options other than the ones you started with. have faith that they will find what works for you. May God bless you.

January 15

Related Questions

View All
A MyLeukemiaTeam Member asked a question 💭
Decatur, GA

A MyLeukemiaTeam Member asked a question 💭
Randolph, VT