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I'm 62 and have CLL was treated a year ago with chemotherapy.

January 28
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A MyLeukemiaTeam Member

Hey Jane, during my chemotherapyof infusion and Calquence, I went lost thirty pounds without any changes in my diet. This happened over about 60 days, and u became concerned when my weight told my doctor that I hadn't weighed 153 pounds since I was 16 years old.
So she prescribed Ensure Nutritional Supplement to drink three times day. I never gained all the weight back, which actually was a bit of a blessing, but at best felt better having lost some excess weight.
I've been in remission for two years now, and still drink an Ensure occasionally since I have noticeable muscle loss, but still maintain my weight.

January 29
MyLeukemiaTeam

Is unintended weight loss with CLL something to be concerned about?

Yes, unintended weight loss is worth discussing with your doctor, even if you're currently at a healthy weight. Weight loss is a common symptom that many people with CLL experience, and it can happen at various stages of the disease.

Many MyLeukemiaTeam Show Full Answer

Is unintended weight loss with CLL something to be concerned about?

Yes, unintended weight loss is worth discussing with your doctor, even if you're currently at a healthy weight. Weight loss is a common symptom that many people with CLL experience, and it can happen at various stages of the disease.

Many MyLeukemiaTeam members have shared similar experiences:
- One member lost 35 pounds before diagnosis and continued having appetite issues
- Another member lost 18 pounds after their leukemia diagnosis
- Members often report having to force themselves to eat due to appetite loss

Weight loss can be related to several CLL-related factors, including appetite loss, fatigue, and the disease itself. Since you're losing about a pound per week consistently, this is something your healthcare team should evaluate to determine the underlying cause and whether any intervention is needed. What should you do?

Contact your oncologist to discuss this weight loss pattern. They can:
- Check your blood counts for anemia or other issues
- Evaluate whether your CLL is progressing
- Assess your nutritional status
- Rule out other contributing factors

In the meantime, focus on eating nutritious, calorie-dense foods even if your appetite is low. A dietitian referral might help you develop strategies to maintain your weight while managing any appetite challenges.

January 28

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Queens, NY