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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
Atlanta, GA
February 6
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A MyLeukemiaTeam Member

Yes and I keep telling my doctor it getting worse . She tells me I am great even when my numbers doubled in less than 6 months. So I understand how frustrating it is. I am sorry you feeling this way.

February 7
MyLeukemiaTeam

Are you finding that even at Stage 0, you're still quite tired at the end of the day?

Yes, fatigue is very common even in early-stage leukemia. Many people experience extreme tiredness before they're even diagnosed, and it can persist throughout all stages of the disease.

A MyLeukemiaTeam member with early-stage CLL Show Full Answer

Are you finding that even at Stage 0, you're still quite tired at the end of the day?

Yes, fatigue is very common even in early-stage leukemia. Many people experience extreme tiredness before they're even diagnosed, and it can persist throughout all stages of the disease.

A MyLeukemiaTeam member with early-stage CLL shared: "I'm in early-stage CLL, and most days, I have extreme fatigue. Every few days, I have a good day and accomplish things, making me feel so good. And then I plummet again."

Another member described being diagnosed at 71 years old and feeling like they'd been "going downhill for over a year with very low energy," despite always being very active.

Cancer-related fatigue affects 80 to 100 percent of people with blood cancers. It's not just regular tiredness that sleep can fix—it's persistent exhaustion that interferes with daily activities.

The good news is there are ways to manage it:

- Stay physically active (even light exercise like walking can help)
- Eat nutritious foods
- Rest when you need to without guilt
- Talk to your doctor about any reversible causes like anemia or thyroid issues

Listen to your body and pace yourself. This fatigue is real, and you're not alone in experiencing it.

February 6

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