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I’ve been ramped up to my 400mg of Venetoclax now for about a month. I too was nervous about getting to that dosage. I did drink about 3 litres of water a day however, and still do. This is supposed to help.
Now I’m experiencing quite a bit of joint pain, frequent gastrointestinal issues, and severe back pain. I’m hoping these issues will clear up or reduce in severity once my body adapts 🤞 I definitely want to remain on this treatment however because I know the Venetoclax/Calquence together are considered the “gold standard” for treatment for CLL. I figure if I am finally able to finish both these meds at the end of the 12 months, that any discomforts along the way will have been worth it.
Good luck with your treatment!
one month in ... doing ok. occasional tired/ nausea ..
No Chemo .. 7 days now on Ibrutinib
I never had chemo because I requested medication. I have read about the ill affects of chemo and I find it hard to believe people still get injected with chemo? Many people get their injections at a hospital because of the possible ill affects including brain fog. I hope you can get medication to control those bad cells and experiment with your health with a safer method.
How has your experience been starting venetoclax so far?
Venetoclax (Venclexta) is commonly used to treat certain types of leukemia, including CLL and AML. Many people have shared their experiences with this medication.
Common side effects that members have reported include
* Anemia (low red blood cell count)
* Show Full Answer
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