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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is anyone else experiencing lower back pain and rib pain? Worst night ever, could not shut my brain off! Flip flopped, all night!

A MyLeukemiaTeam Member asked a question 💭
Manchester, IL
March 24
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Reactions
A MyLeukemiaTeam Member

My back pain is not from leukemia as I have had back issue since I was 17. I'm 71 now and am in remission 5 years come April of this year. my lower back has stenosis according to the doctors. my reply is the fact you can't your mind off, like me. It causes many sleepless nights. I just try and will myself to say, "just sleep" Most of the time it works.

March 24
A MyLeukemiaTeam Member

I noticed this week that I have been tossing and turning in bed at night and if I sleep in one position to long I am sore? I am 74 but have no physical problems though I do have CLL. Normally during the day I am very active and visit the gym 3 times a week. This soreness is new but I am not sore or stiff in the morning if it is really cold or regular weather?

March 25
A MyLeukemiaTeam Member

welcome to getting older! Aches and pains seem to go with aging no matter how well ppl. try and stay fit.

April 11
MyLeukemiaTeam

Are you experiencing lower back pain, rib pain, and trouble sleeping?

Yes, many MyLeukemiaTeam members report similar experiences. Lower back pain and rib pain are common with leukemia, and several members describe severe pain that disrupts their sleep.

One member shared, "I am tossing back and forth with backaches and Show Full Answer

Are you experiencing lower back pain, rib pain, and trouble sleeping?

Yes, many MyLeukemiaTeam members report similar experiences. Lower back pain and rib pain are common with leukemia, and several members describe severe pain that disrupts their sleep.

One member shared, "I am tossing back and forth with backaches and neuropathy. I can't imagine trying to work because of the sleep problems right now." Another wrote, "I've been struggling with intense pain in my back and my sides for over a week now. It's been so intense that I have been awakened from a deep sleep in the middle of the night."

The pain can vary in how it feels:
- Sharp, throbbing, or dull
- Constant or coming and going
- Severe enough to make walking difficult

Pain can also make it harder to shut your brain off at night, creating a cycle where pain causes insomnia and insomnia increases pain sensitivity. Here are some strategies that have helped other members:

For pain management:
- Talk to your doctor about pain medication, especially at bedtime
- Try CBD oil, Tylenol, or other pain relievers your doctor recommends
- Consider physical therapy, acupuncture, or massage therapy
- Gentle walks when you're able

For sleep:
- Keep a consistent bedtime and wake time
- Make your room cool, dark, and quiet
- Relax before bed with a warm bath or calming music
- Avoid screens and caffeine before bedtime
- Try deep breathing or meditation

It's important to let your oncologist know about your pain and sleep issues. They can refer you to a pain specialist or prescribe sleep aids temporarily to help reset your sleep patterns.

March 24

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