I too, have been undetectable for a few years. My new Dr, calls it remission--that 's wonderful. I’m not "cured" as CML is not curable. I will take any and all I can get. Doing well.--jmb
April 24 (edited)
We use the terms active or inactive--atm I'm inactive--to us it makes it easier for people to understand the cause doesn't ever go away...M
April 26
I have been undetectable for 6 years and have been off sprycel for 6 years and only have to see my oncologist if my blood work shows any unusual signs
April 23
Going into remission with CML doesn't quite mean being "cancer-free." Remission means the leukemia has been reduced to very low or undetectable levels — but it's not the same as the cancer being completely gone.
Even NBA legend Kareem Abdul-Jabbar, who has CML, once described himself as cancer-free but later clarified he Show Full Answer
Going into remission with CML doesn't quite mean being "cancer-free." Remission means the leukemia has been reduced to very low or undetectable levels — but it's not the same as the cancer being completely gone.
Even NBA legend Kareem Abdul-Jabbar, who has CML, once described himself as cancer-free but later clarified he misspoke. He now describes his situation as having managed his cancer down to a microscopic level — so few cells remain that they're hard to detect, but they're still there. For most people with CML, remission is maintained through ongoing treatment. Here's what that typically looks like:
- Long-term TKI therapy (tyrosine kinase inhibitors) is usually required to keep the leukemia from coming back
- Stopping treatment can lead to a relapse (return of active CML) for most people
- Some people with deep, sustained remission may eventually be able to stop TKIs under close medical supervision — but this is decided case by case with a doctor
The good news is that with modern treatments, many people with CML can live near-normal lifespans. It's always worth having an open conversation with a healthcare team about what remission means for each individual situation.
April 23
MarySikes because I have an incurable cancer. There are treatments that do a great job to make life better, they just don’t cure. A bone marrow transplant is the best way to cure but no guarantees.—jmb
April 26