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A MyLeukemiaTeam Member asked a question 💭
San Antonio, TX
April 21, 2020
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Answer Summary

Members came together to answer why CMML isn't always labeled a leukemia, clarifying that it is officially recognized as a blood cancer by the... Read more

Members came together to answer why CMML isn't always labeled a leukemia, clarifying that it is officially recognized as a blood cancer by the WHO, NIH, and LLS, though its classification can be confusing due to overlapping categories like MDS and MPN. Several members shared personal journeys with CMML, including years on watch and wait, stem cell transplants at centers like Johns Hopkins and Fred Hutch, and managing fatigue while staying off medication. A recurring theme was deep faith, gratitude, and mutual encouragement as members and caregivers navigated this rare diagnosis together.

A MyLeukemiaTeam Member

Dodie, I also have CMML, having been diagnosed a year ago. My numbers are still stable so I'm not on any medication yet. Fatigue is overwhelming most days but I can rest or nap when needed. My faith in the Lord sustains me and my family and friends uphold me in prayer. I can truthfully say that I am blessed. I hope you are having a good day. God is good.

April 29, 2023
A MyLeukemiaTeam Member

I have CMML-2. Very rare. Only 1000 cases a year. Survival average is about 3 years but could be anywhere from 1-5. No one has survived more than 5. I plan to break that record. If my knee wasn’t keeping me down I would not know there was anything wrong with me. I feel great. I’m in remission and my numbers are a bit on the low side of normal. I don’t take any medication. I do have fatigue but i have the luxury of taking a break or a nap. My faith sustains me. I wouldn’t be here if the good Lord did not answer my prayers and the prayers of all my family and friends. I’m truly blessed and if the Lord wants me home, I’m going with joy.

April 20, 2023
A MyLeukemiaTeam Member

Chronic myelomonocytic leukemia (CMML) is cancer of the blood. CMML is considered to be one of the myeloproliferative neoplasms (MPNs), a type of chronic blood cancer in which a person's bone marrow does not make blood effectively.

June 7, 2023
A MyLeukemiaTeam Member

Hi Emily, I have CMML, was on watch and wait for 3.5 years, but now preparing for STC in Fall. I was stage 0 to 1 and now 1 w 6% blasts. 64yrs in July. Hope all works out for ur husband.

May 18
A MyLeukemiaTeam Member

It is a Leukemia and is recognized by the LLS.org and W.H.O. (2016) and the MDS foundation, hospitals, COE, the NIH and others.. It took awhile for the science to catch up to the nuances in the data that has accumulated over time. The classification can be confusing as there are many variations to this theme. An example is MDS/MPN, MDS/MPN CMML, MDS-RS CMML it's just crazy. So many folks accounting for so many classifications.

April 14, 2023

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A MyLeukemiaTeam Member asked a question 💭
Anchorage, AK

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