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I have a Standard hospital GI specialist and stumped CLL DR (Stanford) oncologist sày he doesn't think it's the CLL

May 7
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A MyLeukemiaTeam Member

Those bad cells can make our life hard. Some people feel the pains of arthritis or different flus. Organs can be affected like the skin or stomach? Those bad cells seem to be attracted to possible trouble areas inside a person's body. I am not surprised that trouble can pop up any place inside a person's body. We have to have habits that benefit ur boy like eating healthy, taking vitamins, exercising, vaccinations to protect ourselves from possible ill affects from soemthing going wrong?

May 9
A MyLeukemiaTeam Member

I think it’s fairly hard for doctors to figure out digestive system issues that aren’t straightforward damage or disease that a scope can see.

Keep asking questions. Keep detailed notes of symptoms. And if necessary, seek a second opinion or a third. Don’t give up!

May 9
A MyLeukemiaTeam Member

I have CLL and have had IBS-like symptoms with many food intolerance symptoms. Since I have started treatment with a BTK-Inhibitor I have had far fewer IBS type symptoms and am able to eat more types of food. So I do believe there is/was a CLL connection to my gut problems.

May 7
A MyLeukemiaTeam Member

Yeah they don't know I had this problem with the GI before that's why I chose to go to Stanford to see if they can find out what's wrong with me but I can't get straight answers man I show signs of gastroparesis all the signs but when I test work it's negative crazy

May 8
A MyLeukemiaTeam Member

I have CLL. Also Crohn’s disease. What does your GI doctor say is wrong with your stomach? What tests have they done, etc?

May 7

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Pāhoa, Hawaii