Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has anyone have lost their smell and taste ?

A MyLeukemiaTeam Member asked a question 💭
Camillus, NY

CLL STAGE 0 test and wait for blood every 3 months.

June 10
 · 
Reactions
A MyLeukemiaTeam Member

Hi! Yes, I have noticed a dimming of palate and smell. Chemo, covid?? Don't know. But, its extremely upsetting. So many losses, I bear, but I'm a cook. I almost became a chef 50 yrs ago. Cooking is daily expressive need as well as an extreme, daily pleasure - and nutrition.

June 11
A MyLeukemiaTeam Member

I have had a decrease in taste, but I attributed it to an autoimmune condition that causes dry mouth and to the aging process. I’m 76. I have Stage 3 CLL and began taking a targeted therapy pill in December, 2025.

June 10
MyLeukemiaTeam

Have others with CLL Stage 0 experienced loss of smell and taste?

Changes in taste and smell can occur with CLL, though they aren't among the most commonly highlighted symptoms. Some MyLeukemiaTeam members have reported these changes, so you're definitely not alone in noticing this.

At Stage 0, many people feel relatively Show Full Answer

Have others with CLL Stage 0 experienced loss of smell and taste?

Changes in taste and smell can occur with CLL, though they aren't among the most commonly highlighted symptoms. Some MyLeukemiaTeam members have reported these changes, so you're definitely not alone in noticing this.

At Stage 0, many people feel relatively well, with the most commonly reported symptom being fatigue. One MyLeukemiaTeam member with Stage 0 noted, "The only symptom I have so far is that I tire a little quicker than I used to." Since you're in a watch-and-wait phase with blood work every 3 months, it's still worth mentioning taste and smell changes to your doctor at your next visit. They'll want to know about any new or changing symptoms, even if they seem minor.

Key things to watch for and report at Stage 0 include:

- Increasing fatigue
- Night sweats
- Unexplained weight loss
- Fever lasting more than two weeks
- Swollen lymph nodes

These can be signs that CLL may be progressing, which could affect your monitoring schedule.

June 10

Related Questions

View All

Smelling cigarette smoke

A MyLeukemiaTeam Member asked a question 💭
New Braunfels, TX
February 8, 2024

7 Causes of Leukemia Fatigue and 4 Ways To Manage It
CML Treatment Side Effects: 5 Tips for Relief
Leukemia and Neuropathy: Nerve Damage Causes and Treatments