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My question is who else has had hemolytic anemia

June 18
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A MyLeukemiaTeam Member

I’m so sorry, however some form of anemia or several are one of the lovely out croppings of our diseases(s). Your hg and bilirubin counts now become front and center and as was stated that does go along with CLL as a partner.
I’m going to caution and advise you do NOT rush out and purchase supplements thinking they will help MANY supplements help bmc to spread or provide a platform for it to grow. Learn to read ingredients of supplements, sleep aids, gummies, energy drinks etc maniacally. Even something as benign as yogurt “with vitamins” can be dangerous to us and our hematologists aren’t savvy to the multitude of issues that many downstream supplements can cause. The other side of the coin is danger to the liver from supplements. So, that’s my advice today, I’m passionate about the supplement issue having studied it a lot over these last years with liver disease and now the leukemias and being very wary because our tendency nowadays is to pop vitamins. Sending you hugs and support. Michele

June 18
A MyLeukemiaTeam Member

Rituximab and steroids. 1 infusion weekly for 8 weeks. The infusions take 3 to 4 hours. No side effects

June 19 (edited)
A MyLeukemiaTeam Member

John, please let me know how the infusion goes for the next couple of days. That will be my therapy as well. I pray you tolerate it with minimal side effects. I’ve heard some people say they felt much better once those cancer cells started dying. Just be sure to drink about 60 oz. of water daily to flush out the dead cells.

October 4
A MyLeukemiaTeam Member

Starting infusions of Gazyva tomorrow Oct 5th, which will last 6 months

October 4
A MyLeukemiaTeam Member

John
I'm so sorry you are going through this. What treatment did the doctor decide for you?
I do agree with Michelle on the over the counter supplements...some definitely do more harm than good.
I know you must have been absolutely exhausted, I hope you are feeling better now. Take care and keep us posted.

June 19

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Toledo, OH