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Curious about a sign they say is of our disease- the tiny red dots called petechiae. Post chemo they’ve lightened quite a bit! Anyone?

A MyLeukemiaTeam Member asked a question 💭
Orange City, FL

I’ve got AML, diagnosed within the last 8 weeks. I was hospitalized for 20 days.. then sent home. I’ll begin lab visits & seeing my doc each once a week. I thought I had the health issues licked- managed MS for 37 years with zero meds. Diet, lifestyle, stress reduction ( the hardest of all) but then THIS. One visit to a new PA I’m working with showed very low platelets… hemoglobin- all of the bloodwork was LOW so - boom! Here I am. Talking a bmb in the next two weeks to see what the chemo did…… read more

June 29
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Answer Summary

Members responded with warmth and personal insight to a question about petechiae (tiny red dots) as a sign of blood cancer, with many sharing... Read more

Members responded with warmth and personal insight to a question about petechiae (tiny red dots) as a sign of blood cancer, with many sharing that the dots tend to fade after treatment and hospitalization. Several members described their own warning signs of dropping platelets, including extreme exhaustion, lightheadedness, and feeling unable to function, encouraging others to call their doctor and get bloodwork checked right away. A recurring theme was the importance of taking precautions like wearing masks, avoiding sick people, and being supervised during activities, along with strong emotional support reminding newly diagnosed members that fear is normal and that this scary stage can and does pass.

A MyLeukemiaTeam Member

Also to answer the question. The dots will fade…

July 8
A MyLeukemiaTeam Member

My husband is in remission from ALL and when he was in the thick of it at the beginning visits to the ER for blood transfusions and platelets were common place. He felt horrible- when that happens make sure you avoid anyone sick and sanitize everything. Wear a mask at hospital. Like the old Covid rules. Neutropenia is very serious. Also be careful getting up from sitting position and make sure you are supervised is shower if you can be. Be careful of too much steam. My husband actually passed out at one point. Stay positive and know that this scary stage will pass. Eventually it’ll become normal, but for now being scared is totally understandable. We were too. But now we are ok🙌🏽 sending you love

July 8
A MyLeukemiaTeam Member

Thanks Donna I hope they go away forever...for everyone...I hate them

July 6
A MyLeukemiaTeam Member

Thank you Deb9 … i understand those feelings well… yessss. Now I understand!
That’s what was so curious to me - those dang red dots were suddenly ON MY LEGS & BRIGHT too. What the??? But amazingly after the hospitalization… I happened to notice- wow!! Gone! Orrr sooo faded i could not see them. Now the older ones I’ve had for a long long time are still there… on the torso.. but these new ones are GONE. Happy day!!

July 4
A MyLeukemiaTeam Member

Just wondering Deb9… what are your warning signs dear? Thank you❤️🫂
Coming home from hospital- i didn’t expect to feel so BLECH….exhausted… now I’ve got this shoulder bone pain & wondering?? Did I do something wrong? Is this the leukemia? Boy… it’s a long learning curve 😰hope that you’re Feeling well today!

June 30

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