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I have been in remission now for a little longer than two years. But I still see my oncologist every three months to have blood work done, because in almost all cases, it does return. On the average it returns after 3-5 years.
The interesting thing is, even though I am considered to be in "complete remission", i still am not allowed to donate blood or be an organ donor.
It is my understanding from my Oncologist that CLL will always be there but it will be managed well. I am taking Calquence and my numbers are all back to normal. I am very thankful for that. I will still be checked every year. Have a wonderful week.
Barbara
This CLL is a long term illness. We have are good and bad times with this illness.
I am in remission.
That's a really important question, and it makes sense to want clarity on where things stand after finishing treatment.
Completing chemotherapy and having your port removed is a significant milestone! However, CLL is generally considered a chronic condition, meaning it doesn't simply go away after treatment ends. After Show Full Answer
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