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August 12
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MyLeukemiaTeam

It sounds like your oncologist is being proactive in finding the right balance between effective treatment and managing side effects — that's a good sign!

Dose adjustments are a common part of leukemia treatment. Working closely with your care team to fine-tune your dosage can make a real difference in your quality of life Show Full Answer

It sounds like your oncologist is being proactive in finding the right balance between effective treatment and managing side effects — that's a good sign!

Dose adjustments are a common part of leukemia treatment. Working closely with your care team to fine-tune your dosage can make a real difference in your quality of life while keeping your treatment on track. Before your Monday conversation, it may help to keep track of:

- Which side effects you've been experiencing
- How often they occur
- How severe they feel on a day-to-day basis
- Any changes you notice after reducing the dose

This information will help your oncologist make the best decision for your treatment plan going forward. Open communication with your care team is one of the most effective ways to manage side effects — so don't hold back on sharing even the small details!

August 12
A MyLeukemiaTeam Member

Last September I stopped my medication for a month to stop a strange ill affect. My blood test before and after were 100% normal. I began my medication at 50% dose and my blood test continued to be 100% normal. All medications can have possible ill affects but I think you will find no problem with ill affects or protection. Many people are taking reduced dose with 100% normal protection.

August 13
A MyLeukemiaTeam Member

Wishing you fewer or no side effects with this new treatment plan!

August 13
A MyLeukemiaTeam Member

Hopefully the side effects subside, because that will alter the rest of your treatment. I have been blessed so far because mine usually only last a day or two, except for mild headache or brain fog which comes and goes during the day. Hopefully they get yours straightened out soon.

August 13
A MyLeukemiaTeam Member

Randy,

I had to reduce my dosage of a BTK inhibitor because of serious side effects. The side effects are better on the lower dosage.

Of course I wonder if, with a lower dose, it will take longer to determine the effectiveness. My oncologist said he honestly didn’t know.

I see my oncologist on Tuesday. (Scans today.)

Stay positive.

August 13

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San Jose, CA