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A 27 years F has CML since 2023, takes Dastanib pill daily. Is there anyone with simialr case suspended the medicine and got pregnant safly

A MyLeukemiaTeam Member asked a question 💭
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MahaSurkhi
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I am a mother of CML daughter. she is 27 years old now. While she is 24 years old , in Sep 2023, she got Lukimia CML (Chronic type) and she takes Dastanib medicine every day 50 mg (first 3 months she took 100mg dose)
My question to you
Have you you ever hear about a case for a woman who was able to hold on taking this Lokimia medicine for 9 months (stopped the medication for 9 months) and was able to get pregnant without any danger on her life? Please let… read more

August 14
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MyLeukemiaTeam

What a loving mother you are for researching this so carefully for your daughter. This is such an important question, and it's completely understandable to want to explore all possibilities.

This is a deeply personal and medically complex situation. TKIs like dasatinib are generally not recommended during pregnancy because Show Full Answer

What a loving mother you are for researching this so carefully for your daughter. This is such an important question, and it's completely understandable to want to explore all possibilities.

This is a deeply personal and medically complex situation. TKIs like dasatinib are generally not recommended during pregnancy because they can harm a developing baby. Stopping treatment, even temporarily, carries real risks — CML could become active or progress during that time.

Here is what is known:
- Stopping TKI treatment is only considered for patients who have achieved a deep, sustained remission over several years
- Research into "treatment-free remission" (TFR) is still relatively new and ongoing
- Not everyone qualifies — it depends heavily on how well and how long the CML has been controlled
- If CML returns after stopping, restarting treatment is usually needed quickly Since your daughter has only been on treatment since 2023, she is still in the early stages of her treatment journey. A decision like stopping medication for pregnancy would need very careful evaluation by her oncologist.

The most important step is for her doctor to assess:
- Whether she has reached deep remission
- How stable her response to dasatinib has been
- What the safest path forward looks like for both her health and a potential pregnancy

Please encourage her to have an open, honest conversation with her oncologist about her hopes for the future — doctors can help plan around this. She is young, and her care team will want to support her quality of life too. 💛

August 14

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