Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have had chronic lymphocytic leukemia for approximately three years. My lymphocyte count cut up to 100.

A MyLeukemiaTeam Member asked a question 💭
Toledo, OH

This isn’t really a question but I just wanted to let everybody know that they need to pay attention to their hemoglobin count. I hemoglobin dropped down to 3.6/3.7 somewhere in that neighborhood. After crawling out to the car, my wife took me to the ER. I was diagnosed with hemolytic anemia. I think that is somewhat rare. But I just wanna let everybody know to pay attention to your CBC counts, your red blood cell counts, your hemoglobin counts, and your platelet counts. I know I brought this up… read more

September 3
 · 
Reactions
A MyLeukemiaTeam Member

Thank you, John! So grateful you are okay. Usually they transfuse you when it drops below 7, so yours was critically low.

September 4
A MyLeukemiaTeam Member

Thanks so much John for the reminder. We all tend to forget that the other results matter & factor in to what we have. Also, we must not hesitate to question & ask our medical people why things other than lymphocytes/wbcs are low or high…

September 3
MyLeukemiaTeam

What an incredibly important experience to share — and what a reminder of how much the people around us matter. So glad your wife was there. 🙏

A MyLeukemiaTeam member shared that their hemoglobin dropped to around 3.6–3.7, leaving them barely able to move, and was later diagnosed with hemolytic anemia — a condition where Show Full Answer

What an incredibly important experience to share — and what a reminder of how much the people around us matter. So glad your wife was there. 🙏

A MyLeukemiaTeam member shared that their hemoglobin dropped to around 3.6–3.7, leaving them barely able to move, and was later diagnosed with hemolytic anemia — a condition where the immune system mistakenly destroys red blood cells, which can occur with CLL. This is a powerful reminder for everyone managing CLL to stay on top of their CBC results. Key numbers to watch include:

- Hemoglobin — low levels can cause extreme fatigue and weakness
- Red blood cell count — signals how well your blood is carrying oxygen
- Platelet count — low levels can cause bruising or bleeding issues
- White blood cell count — helps track how CLL is progressing

Never brush off sudden or extreme fatigue. It could be your body sending a serious signal. Always contact your doctor or go to the ER if something feels very wrong.

September 3

Related Questions

View All

With CLL/SLL at what point were you put on medication?

A MyLeukemiaTeam Member asked a question 💭
Pittsburgh, PA
September 14, 2024

Diagnosing Chronic Lymphocytic Leukemia
Is Chronic Lymphocytic Leukemia (CLL) Hereditary?
Chronic Lymphocytic Leukemia Treatment Options