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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
Spokane, WA

It's there inside inside my bones deep pain inside my bone marrow like that deep is this normal for my bones to hurt so bad an deeply

3 days ago
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A MyLeukemiaTeam Member

Dont hesitate to let your medical team know about the pain Jennavive.

2 days ago
MyLeukemiaTeam

That deep, aching pain inside the bones is something many people with leukemia experience, and you are absolutely not alone in feeling it.

Bone pain happens because leukemia causes abnormal white blood cells to build up inside the bone marrow. This buildup creates pressure on the nerves within the bone tissue, which can Show Full Answer

That deep, aching pain inside the bones is something many people with leukemia experience, and you are absolutely not alone in feeling it.

Bone pain happens because leukemia causes abnormal white blood cells to build up inside the bone marrow. This buildup creates pressure on the nerves within the bone tissue, which can cause that deep, intense soreness or sharp pain you're describing. A MyLeukemiaTeam member shared: "The worst thing is pain when you can't find relief." Others have described pain severe enough to make walking difficult. So what you're feeling is real, and it's recognized.

Some things that may help ease the pain include:

- Over-the-counter options like acetaminophen (Tylenol) or ibuprofen (Advil)
- Cold compresses on painful areas
- Prescription pain relief that your oncologist can provide

Please don't tough this out alone — let your oncology team know how severe the pain is. They can adjust your care plan to help manage it better. Deep bone pain that is worsening is always worth a conversation with your doctor right away.

3 days ago
A MyLeukemiaTeam Member

The oncologist calls this large bone pain. Stay strong..

3 days ago

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