I only had a blood test and was told I had CLL. I had to learn everything by joining groups and reading questions and answers. My medicine used the BTKInhibitor to kill bad cells. All medications have possible ill affects but I did not have any problems the first year. The second year I developed a strange cough. I stopped taking pill for a month and coughing stopped. I now take pill at 50% dose and my blood and my life is 100% normal. Join other groups and find your answers. My medication can work for 10 to 20 years then time for a new medication. I never had chemo treatment since that can have ill affects with a person’s body and nervous system. Eating healthy and exercising does benefit your health which I have done.

I believe I had luekimia 6months before diagnosed Dr's. Ignored my exosted feeling back pain unable to breath 4 hours in er. Told we ran test 4 times. AML 16 months ago now in 1months remission. I'm trying to say there's hope nomatter how long before treatment starts

I can’t see a. Hematologist until November 30 is that too late? I have very low white cells low red cells that are large and large w platelets . I don’t think 6 weeks to see a specialist is a long time?

Hi Jessie. First & foremost is.. please keep in mind that all of us are uniquely different..all of our immune systems, etc are vastly different. Not a one size fits all. You mentioned that you haven’t been officially diagnosed with leukemia bit your numbers have changed? Anyways, if you are overly concerned & do not want to wait till November for your next appointment, call & see if they can see you sooner.