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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

ARE THERE ANY VOLUNTEER STUDYS FOR NEW CURES FOR CLL

A MyLeukemiaTeam Member asked a question 💭
5 days ago
 · 
Reactions
A MyLeukemiaTeam Member

nib drug research sounds useful. I was on a mab drug trial (Fasinumab) but my GP advised against further volunteering which I did.
Risk, Chance and Probability. Just as well because soon after I read this:
https://pharmaphorum.com/news/and-then-there-we...

And then there were none: Regeneron cans last late-stage NGF drug
And then there were none: Regeneron cans last late-stage NGF drug
https://pharmaphorum.com/news/and-then-there-were-none-regeneron-cans-last-late-stage-ngf-drug
2 days ago (edited)
A MyLeukemiaTeam Member

I’m taking part in a Clinical Trial right now. It’s a Phase 3 trial of a 3rd generation BTK Inhibitor, Nemtabrutinib, in CLL patients who have not had any previous treatment. I was chosen by a computer to take the trial med rather than Calquence (Acalabrutinib). As a part of the trial I have CT scans every 3 months as well as blood tests. After I meet with my oncologist I meet with the trial nurse. I have to answer multiple questions about side effects as a part of the trial. The medication and scans are paid for by the trial sponsors but my office visit and bloodwork is paid for by my insurance.

If you have more questions about the trial process, let me know.

4 days ago
A MyLeukemiaTeam Member

Can you elect to start therapy?

4 days ago
Instant Answer

Yes! Clinical trials are a great way to access cutting-edge treatments for CLL that aren't yet widely available. These studies test new medications, new combinations of therapies, and potential new approaches to treatment.

Here's what's worth knowing about clinical trials for CLL:

- They help researchers determine if new Show Full Answer

Yes! Clinical trials are a great way to access cutting-edge treatments for CLL that aren't yet widely available. These studies test new medications, new combinations of therapies, and potential new approaches to treatment.

Here's what's worth knowing about clinical trials for CLL:

- They help researchers determine if new treatments are safe and effective
- Participants may gain access to promising new medications before they're widely available
- They are voluntary, and your care team can help guide the decision
- Trials may test new drugs, new drug combinations, or even new approaches like CAR-T therapy

The best first step is to talk to your doctor or oncologist about whether a clinical trial might be a good fit based on your specific situation, treatment history, and overall health.

You can also search for open studies at ClinicalTrials.gov, which lists trials currently enrolling participants across the country and worldwide.

5 days ago

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