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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Besponsa"

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Anyone Taking Iclusig? Side Effects? Results?

Anyone Taking Iclusig? Side Effects? Results?

The Iclusig put me into remission but severe skin issue developed. Will restart Iclusig at reduced dosage today after pausing for almost 6 weeks. In addition to Iclusig tablet also having weekly Besponda infusions 3 out of 4 weeks of the month. Anyone on Iclusig?

A MyLeukemiaTeam Member said:

I’ve had a couple of reactions right now and for several weeks a skin rash that is red and itches really bad so I had to stop the drug!

posted 9 months ago

So I Have CLL My Doctor Says We Should Watch And Wait My WBC Is At 19 At What Point Should I Be Having Some Kind Of Treatment

So I Have CLL My Doctor Says We Should Watch And Wait My WBC Is At 19 At What Point Should I Be Having Some Kind Of Treatment

My CLL is in my marrow just wondering should I get a second opinion
Thanks
Victor

A MyLeukemiaTeam Member said:

I'm not a doctor and certainly not an oncologist but I did work in a medical lab for years doing hematology. The white cell count (WBC or leucocytes if you will) are the first indicators of things… read more

posted about 1 month ago

Getting Away

Getting Away

During treatment has anyone been able to travel? We are just at the beginning but I feel like we can't do anything or plan. It's 7 days of chemo in cancer center, then blood work twice a week! The center is 45 minutes from us so we can't do anything else. Monday we spent 3 hours at the center for blood work and all the numbers were good. Has to be a better way.

A MyLeukemiaTeam Member said:

I am still going to treatment and my wife has missed a timeshare meeting with family for the last four years. I decided I wanted her to go for her. She is so wonderful and takes care of all my needs… read more

posted 3 months ago

I Have CLL. What Exactly Am I Watching And Waiting For?

I Have CLL. What Exactly Am I Watching And Waiting For?

Am I waiting for the pain to reach a threshold? The numbers? The size of my lymph nodes? I am not getting a straight answer from my doctors.

A MyLeukemiaTeam Member said:

I had a bone BMB and it was the worst pain I have ever experienced. I had 6 children and it wasn't nearly as painful. They don't sedate you but should.

posted about 1 month ago

Effectiveness Of Vaccine While On Alcalabrutinib. ?

Effectiveness Of Vaccine While On Alcalabrutinib. ?

I'm currently on Alcalabrutinib (Calquence) for CLL. All my bloodwork shows I'm in normal ranges for WBC, RBC, Hemoglobin, as well as other indicators and am considered in remission for 6 months. I've had both Pfizer vaccine shots 60 days ago with no side effects or issues. After an antibodies test 4 weeks after my second shot, my specialist claims my efficacy is 'less than robust' against COVID 19. Test results were: Anti-SARS-CoV-2 Spike Protein IgG Index: 0.02 S/CO std range: 0.00 -… read more

A MyLeukemiaTeam Member said:

When I flew to TX end of July to see kids, my friend at the hospital acquired n95 masks for me so I double masked the whole day, in plane, in airport, say away from people as much as possible, used… read more

posted 8 months ago

Leukemia And Night Sweats

Leukemia And Night Sweats

Do you have any articles on Night Sweats? I am experiencing them nightly!!

A MyLeukemiaTeam Member said:

Just had my 1st round of chemo 1 week ago. Started having night sweats every night since then. I get up to put on dry pajamas 2
Or 3 times per night.

posted 9 months ago

Does Oral Chemo For Cm L Cause Tingling Of Anyone Else's Hands?

Does Oral Chemo For Cm L Cause Tingling Of Anyone Else's Hands?

I have been on Sprycel 100mg every day for 6 months after a Gleevec failure. I have noticed lately that anytime my hands/arms/legs/feet are sedentary, even for the smallest amount of time, it feels like they fall asleep and start tingling. Is there anyone else that experiences this? What is it? Side effect of the chemo? I thought perhaps nerve damage but I take nerve pain medication and it still happens.

A MyLeukemiaTeam Member said:

My husband has been having the same problem. He thought it was just because of working more than he should. Thanks for the insight.

posted 8 months ago