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Top 10 Search Results for "Besponsa"

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Anyone Taking Iclusig? Side Effects? Results?

Anyone Taking Iclusig? Side Effects? Results?

The Iclusig put me into remission but severe skin issue developed. Will restart Iclusig at reduced dosage today after pausing for almost 6 weeks. In addition to Iclusig tablet also having weekly Besponda infusions 3 out of 4 weeks of the month. Anyone on Iclusig?

A MyLeukemiaTeam Member said:

I’ve had a couple of reactions right now and for several weeks a skin rash that is red and itches really bad so I had to stop the drug!

posted 4 months ago

Effectiveness Of Vaccine While On Alcalabrutinib. ?

Effectiveness Of Vaccine While On Alcalabrutinib. ?

I'm currently on Alcalabrutinib (Calquence) for CLL. All my bloodwork shows I'm in normal ranges for WBC, RBC, Hemoglobin, as well as other indicators and am considered in remission for 6 months. I've had both Pfizer vaccine shots 60 days ago with no side effects or issues. After an antibodies test 4 weeks after my second shot, my specialist claims my efficacy is 'less than robust' against COVID 19. Test results were: Anti-SARS-CoV-2 Spike Protein IgG Index: 0.02 S/CO std range: 0.00 -… read more

A MyLeukemiaTeam Member said:

When I flew to TX end of July to see kids, my friend at the hospital acquired n95 masks for me so I double masked the whole day, in plane, in airport, say away from people as much as possible, used… read more

posted 3 months ago

Leukemia And Night Sweats

Leukemia And Night Sweats

Do you have any articles on Night Sweats? I am experiencing them nightly!!

A MyLeukemiaTeam Member said:

Just had my 1st round of chemo 1 week ago. Started having night sweats every night since then. I get up to put on dry pajamas 2
Or 3 times per night.

posted 3 months ago

Does Oral Chemo For Cm L Cause Tingling Of Anyone Else's Hands?

Does Oral Chemo For Cm L Cause Tingling Of Anyone Else's Hands?

I have been on Sprycel 100mg every day for 6 months after a Gleevec failure. I have noticed lately that anytime my hands/arms/legs/feet are sedentary, even for the smallest amount of time, it feels like they fall asleep and start tingling. Is there anyone else that experiences this? What is it? Side effect of the chemo? I thought perhaps nerve damage but I take nerve pain medication and it still happens.

A MyLeukemiaTeam Member said:

My husband has been having the same problem. He thought it was just because of working more than he should. Thanks for the insight.

posted about 2 months ago

Vaccine

Vaccine

Can people with chronic lymphatic lukemia take the covid-19 vaccine?

A MyLeukemiaTeam Member said:

I got my first one in March.

posted 5 months ago

Learning About CLL

Learning About CLL

I'm 51. My WBC is 63,000 my Lymphocytes are 54. When does treatment usually start. Why not treat now instead of waiting till it progresses. Very Confusing. Thx

A MyLeukemiaTeam Member said:

My oncologist would start treatment when my white count was at 50,000. The retuxin drip worked for years. But in March it didn't work as well so oncologist called for genetic blood testing and put me… read more

posted 6 months ago

CLL Affecting My T-cells, Not My B- Cells.

CLL Affecting My T-cells, Not My B- Cells.

I am wondering if anyone with a diagnosis of CLL has been told that their CLL affects their T-cells, not the usual B-cells. I'm trying to determine how common or uncommon my particular diagnosis is? My CLL affects my T-cells. I was diagnosed in Dec 2017. My doctor has adopted a "watch & wait" treatment.

A MyLeukemiaTeam Member said:

My doctor has said the same watch and wait 🤔

posted 8 months ago

Donor Cells

Donor Cells

I am interested to learn from those who have had a stem cell transplant for AML or any leukemia for that matter. I would like to ask what you percent of donor cells did you have after transplant? How long since your transplant. Anyone who transplant has not cured? Thanks for any information.

A MyLeukemiaTeam Member said:

Or should I just be grateful to make it through the SCT - which was the hardest thing I have ever done. Did not think I was going to make it.

posted 4 months ago

CLL Treatment And Residual Neuropathy

CLL Treatment And Residual Neuropathy

Hello,

My girlfriend, 64, is a previous leukemia patient and survivor. She also has some neurological issues that affect her memory. This, coupled with the fact that she was also very sick with leukemia, makes it difficult for her to recall some of the details of the time span in which she was sick.

My girlfriend gets exhausted quickly, which we attribute in part to her past illness, but she also has a lingering neuropathy problem.

She thinks that she was taking a drug by the name of… read more

A MyLeukemiaTeam Member said:

Hang in there. I would like for you to think About finding a good oncologist. I have cll and retuxin drips for four Mondays in March. Didn't work as well as it did so oncologist called for genetic… read more

posted 8 months ago