The Iclusig put me into remission but severe skin issue developed. Will restart Iclusig at reduced dosage today after pausing for almost 6 weeks. In addition to Iclusig tablet also having weekly Besponda infusions 3 out of 4 weeks of the month. Anyone on Iclusig?
My CLL is in my marrow just wondering should I get a second opinion
Thanks
Victor
I'm not a doctor and certainly not an oncologist but I did work in a medical lab for years doing hematology. The white cell count (WBC or leucocytes if you will) are the first indicators of things… read more
I would appreciate hearing from you and your experience.
God bless.
During treatment has anyone been able to travel? We are just at the beginning but I feel like we can't do anything or plan. It's 7 days of chemo in cancer center, then blood work twice a week! The center is 45 minutes from us so we can't do anything else. Monday we spent 3 hours at the center for blood work and all the numbers were good. Has to be a better way.
Am I waiting for the pain to reach a threshold? The numbers? The size of my lymph nodes? I am not getting a straight answer from my doctors.
I'm currently on Alcalabrutinib (Calquence) for CLL. All my bloodwork shows I'm in normal ranges for WBC, RBC, Hemoglobin, as well as other indicators and am considered in remission for 6 months. I've had both Pfizer vaccine shots 60 days ago with no side effects or issues. After an antibodies test 4 weeks after my second shot, my specialist claims my efficacy is 'less than robust' against COVID 19. Test results were: Anti-SARS-CoV-2 Spike Protein IgG Index: 0.02 S/CO std range: 0.00 -… read more
When I flew to TX end of July to see kids, my friend at the hospital acquired n95 masks for me so I double masked the whole day, in plane, in airport, say away from people as much as possible, used… read more
Do you have any articles on Night Sweats? I am experiencing them nightly!!
Just had my 1st round of chemo 1 week ago. Started having night sweats every night since then. I get up to put on dry pajamas 2
Or 3 times per night.
I have been on Sprycel 100mg every day for 6 months after a Gleevec failure. I have noticed lately that anytime my hands/arms/legs/feet are sedentary, even for the smallest amount of time, it feels like they fall asleep and start tingling. Is there anyone else that experiences this? What is it? Side effect of the chemo? I thought perhaps nerve damage but I take nerve pain medication and it still happens.