Hi! I am yet to be diagnosed but here’s my background, I’ve been ill for about a year now, I feel drained, I have shortness of breath, unexplained bruises and rashes, but my first couple of symptoms were excruciating abdominal pain and having period bleeding for months on end. Whenever things first started I got a CBC from my family doctor and everything was fine so he sent me to a gyno and gastro. I’ve had multiple scans, ultrasound, and all kinds of test and my body is completely healthy. This… read more
I have very low white blood & platelet cells and would like to hear from people that have this with AML
My sister in law was diagnosed with leukemia last year at 66, had a stem cell transplant and is doing well. This week my brother in law was diagnosed with leukemia. Seems odd two people from the same household get leukemia. One doctor in passing asked if they lived by cornfields (which they are surrounded by) due to all the chemicals sprayed on the crops. Has anyone else experienced this?
My husband was diagnosed this Easter with AML and has a blood clot in his lung and leg. His WBC was 300,000 to begin with . His first week of chemo plus platelets and now he is getting fevers and slight infections plus he feels cold. Is this part of the chemo? And has anyone been treated at Miami U?
I see a doctor oncologist in private practice I take hydroxyruera 500 mg. twice a day, should I get a second opinion, with a cancer center where doctors can consult with other doctors.
I am interested to learn from those who have had a stem cell transplant for AML or any leukemia for that matter. I would like to ask what you percent of donor cells did you have after transplant? How long since your transplant. Anyone who transplant has not cured? Thanks for any information.
My husband has tcell lgl leukemia.. He is on Trexall 1 time a week. Las Sunday we were in the ER and found out he had dvt and pe. On Friday he had emergency removal of the dvt in his leg jhe will now be on blood thinners for the rest of his life.. My question is, is this a normal side effect and should I expect him to continue to get these. Im scared that in the near future I will have to say goodbye and I'm not ready to loose him. He is my life
I was diagnosed with CLL at the age of 41. My hematologist says 1 in 6 million have CLL at my age. I’ve not met another in my age group with CLL and just curious.
I was told it's incurable and now they're saying since the leukemia hasn't been showing in my blood tests for two years that they can take me off chemo pill (sprycel) and just check me to see if it comes back. Anyone else do this and what happened? I'm truly scared to go off. Help anyone?