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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Bosulif"

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Does Anyone Else Who's Taken Sprycel Have Skin Issues?

Does Anyone Else Who's Taken Sprycel Have Skin Issues?

I have been taking Sprycel for one year since my chronic myeloid leukemia diagnosis. I just recently started having bumpy skin on my face...like my whole face. Is this something that anyone else has had this issue. There are warnings on the label to avoid sun and I have for the most part, but I've recently noticed that my face is bumpy to the touch.

A MyLeukemiaTeam Member

Thank you!!!

I Take Bosulif And I Am Experiencing Side Effects. I Have Cml

I Take Bosulif And I Am Experiencing Side Effects. I Have Cml

My side effects are diarrhea and dizziness. Anybody else ??

A MyLeukemiaTeam Member

My dr. lowered my dose from 400 to 300. It has made a big difference.

CML

CML

Has anyone taken tasigna? If so what side effects are you having or had and do they ever ease up or disappear. I start this pill next week and I'm scared. I was diagnosed in July 19 with CML and was on sprycel but had so much fluid retention got lots of fluid in my lungs so my doctor took me off of it. I was lucky though in a short time with sprycel my numbers went down to undetected and that was the only side effect. But man what a bad side effect. Feels like your drowning. Any help is… read more

A MyLeukemiaTeam Member

Our CML support groups have CMLers on ALL 6 TKIs and we discuss their impact on the family and the patients monthly. Very positive and educational insights on living successfully with CML.

Joan us… read more

Has Anyone Been On Bosulif For CML That Can Share Your Experience On It?

Has Anyone Been On Bosulif For CML That Can Share Your Experience On It?

A MyLeukemiaTeam Member

I was on this for about a week when things went bad and it was suggested I go for a second opinion and now I have had a stem cell transplant because the medications stopped working so the Bosulif was… read more

Questions For Those Taking Gleevec (Imatinib)

Questions For Those Taking Gleevec (Imatinib)

I have been taking Gleevec for one year now. It is my third TKI. The previous two were discontinued because they caused severe pulmonary hypertension
Everyone's experiences with various treatments can be unique. Therefore, I like to be careful when l discuss side effects so as not to potentially deter others who are trying a similar regiment
However, I do have some questions for those of you who take Gleevec (Imatinib).
I want to know if any of you have experienced insomnia, loss of… read more

A MyLeukemiaTeam Member

I assume your husband's leukemia was diagnosed in the chronic stage, meaning he did not have IV chemo... I was diagnosed during an acute lymphoblastic "blast" phase, which required IV chemo. I… read more

Bosulif

Bosulif

Is this a Chemo drug and can i lose my hair from this?

A MyLeukemiaTeam Member

I have CML also and on Sprycel 100mg. And did not loose my hair.

Second Day On Bosutinib? How Much Worse Are Side Effects Compared To Sprycel And Gleevec?

Second Day On Bosutinib? How Much Worse Are Side Effects Compared To Sprycel And Gleevec?

A MyLeukemiaTeam Member

The first week on Bosutinib was so bad that the doctor took me off for two days and then started me back on at 100 mg. and then had some heart flutters (which is weird) so she took me off and did a… read more

Adding Hair Color And Chemo!

Adding Hair Color And Chemo!

Has anyone dyed there hair with a vegetable dye or henna dy and does it work? The doctor says my hair would start to fall out if I used a regular hair color on it and even though they say my chemo isn’t causing my hair loss I don’t want to make it worse because it’s right in the front. I have a gray stripe that really makes it worse so I was just wondering. Also I’m on Bosulif 400 mg.

A MyLeukemiaTeam Member

I highlight every three months and I have no problems with hair falling out. My hair has thinned anyway during the last 10 years. The highlights give it body.
I take Sprycel 100 mgs.

Did Anyone Feel Like The “chemo Side Effects” Before Even Being Diagnosed?

Did Anyone Feel Like The “chemo Side Effects” Before Even Being Diagnosed?

Some days all I do is sleep. I have a hard time staying awake, sometimes even sleeping through nocturnal diarrhea! So embarrassing and disgusting. My stomach hurts much of the time, I’m struggling to eat because of nausea and just no appetite. And the shortness of breath makes me even unable to stand some days. Is this how anybody felt BEFORE being diagnosed? Waiting for bone marrow biopsy to even be scheduled yet…also, do you start to feel somewhat better after treatment starts?

A MyLeukemiaTeam Member

I have MDS and have severe fatigue but now that being treated and I think my body is getting used to having low blood levels actually I am feeling better. Will admit I make myself do things and stay… read more

My PCR Came Back The Same As It Did For Weeks Ago.

My PCR Came Back The Same As It Did For Weeks Ago.

My PCR came back the same as it did four weeks ago. I have been on bosulif for six months and it is gone down every time I have had it. This time my PCR this time has scarcely moved. Has anyone had this experience? Best to you all