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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Chemotherapy"

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I Have AML, What Can I Expect?

I Have AML, What Can I Expect?

I have been diagnosed with AML. Started as MDS 6 years ago. With my chromosomes being all messed up, I am told the outlook is dismal. What can I expect?

A MyLeukemiaTeam Member said:

I did qne year hospital.five years latter doing great,City of Hope

posted 4 months ago

I Was Just Diagnosed With AML And Would Like To Know What To Expect

I Was Just Diagnosed With AML And Would Like To Know What To Expect

I have very low white blood & platelet cells and would like to hear from people that have this with AML

A MyLeukemiaTeam Member said:

My husband has it

posted 4 months ago

After 8 Years Of Remission It’s Back Again.

After 8 Years Of Remission It’s Back Again.

Started chemo again. This time 1 treatment a month for 4 months had my first 7 hr treatment on Monday did not go well had a really bad reaction. After being filled with steroids and stomach meds we re started. Just now getting my sea legs and pray I don’t lose my hair. And pray my next treatment on the 29th of Sept goes better they said it should now they know what to expect. Anyone else experiencing this

A MyLeukemiaTeam Member said:

prayers

posted 4 months ago

Does Oral Chemo For Cm L Cause Tingling Of Anyone Else's Hands?

Does Oral Chemo For Cm L Cause Tingling Of Anyone Else's Hands?

I have been on Sprycel 100mg every day for 6 months after a Gleevec failure. I have noticed lately that anytime my hands/arms/legs/feet are sedentary, even for the smallest amount of time, it feels like they fall asleep and start tingling. Is there anyone else that experiences this? What is it? Side effect of the chemo? I thought perhaps nerve damage but I take nerve pain medication and it still happens.

A MyLeukemiaTeam Member said:

My husband has been having the same problem. He thought it was just because of working more than he should. Thanks for the insight.

posted about 2 months ago

I Am Looking For Treatment For CLL That Does Not Include Chemotherapy.

I Am Looking For Treatment For CLL That Does Not Include Chemotherapy.

I am between Chemotherapy treatments for my CLL and do not want anymore Chemo...

A MyLeukemiaTeam Member said:

Still on w & w. My wbc goes up then down again. Doc wants me in there every 4 months now. Used to use drugs but quit drugs 10 yrs Altogether, just quit cigarettes also. I'm 59 yrs young. 60 in… read more

posted over 1 year ago

Is There Anyone Who Was Diagnosed With CLL While In Their 40’s?

Is There Anyone Who Was Diagnosed With CLL While In Their 40’s?

I was diagnosed with CLL at the age of 41. My hematologist says 1 in 6 million have CLL at my age. I’ve not met another in my age group with CLL and just curious.

A MyLeukemiaTeam Member said:

I fully agree everyone needs to read and to find out what works for them.I feel you have some good ideas

posted 2 days ago

Post Stem Cell Transplant Weight Loss.

Post Stem Cell Transplant Weight Loss.

During my initial one month hospitalization where I underwent a week of 7/3 chemotherapy I lost 20 lbs. In the 6 weeks out of the hospital I have put on 24 pounds. I am curious how much weight I can expect to loose with the 3-4 week hospital stay post transplant. I am tentatively scheduled for my transplant the end of this month. Thanks in advance.
Rich

A MyLeukemiaTeam Member said:

I lost 57ib but was in hospital for a year.

posted 4 months ago

I Have A Dual Diagnosis Of MDS And Hereditary Hemochromotosis. Any One Else? Looking For Some Answers. Thanks

I Have A Dual Diagnosis Of MDS And Hereditary Hemochromotosis. Any One Else? Looking For Some Answers. Thanks

A MyLeukemiaTeam Member said:

I want to tell everyone about a possible therapy for chronic lymphocyte leukemia. My oncologist knew I was not interested in chemotherapy so he gave me a paper telling about Neem leaf extract inducing… read more

posted almost 2 years ago

Venclexta

Venclexta

I was having good luck with Imbruvica . I still don’t know why I was switched to Venclexta. So my question is , what is the difference between the two medicines ?

A MyLeukemiaTeam Member said:

The Venclexta is working fine , absolutely no side affects. My original Dr ( he just retired )!was leaning towards getting off it ( remission ) after a year. I switched to Dana Farber and they… read more

posted about 1 year ago