Connect with others who understand.

sign up log in
About MyLeukemiaTeam
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Clinical trials"

reset

Clinical Trials

Clinical Trials

Hi everyone. Being a bit new at all this stuff, I was wondering what type of general situation makes one eligible for a clinical trial. I'm guessing from what I've read you have to be sick enough so they have something to test, correct?

A MyLeukemiaTeam Member said:

Hi Bob .. I am pretty sure you need to meet the
qualifications for the trial. Mine was that way
Each trial is different. For instance they may hold
a trial on "dosage" of a specific BTK inhibitor… read more

posted 6 months ago

Second Opinion Via Telemedicine

Second Opinion Via Telemedicine

I would like to get a second opinion via telemedicine. Does anyone know how is doing this

A MyLeukemiaTeam Member said:

I wanted to do a Clinical Trial but there is none near me here in Orlando. Some Clinical Trials only give you the drug that you’ve been put on not a placebo!

posted about 1 year ago

What Should The Next Step Be?

What Should The Next Step Be?

Hello,

While recovering from a massive heart attack in the hospital the doctor's told my partner he has Leukemia. They aren't specialists in that area (cancer, Leukemia, etc.). I wasn't there when they told him and he was still on pain medication, but from what he understood his heart is too damaged to withstand radiation and his heart won't heal or ever work properly because of the Leukemia. They gave him 12 months to live. Does this sound logical? He is 58.

We are setting up an… read more

A MyLeukemiaTeam Member said:

https://www.mdanderson.org/cancerwise/arizona-w...(Phone number can only be seen by the question and answer creators).html
I have a friend that did clinical trials at MD Anderson in Arizona. I don’t… read more

posted 11 months ago

Any Thoughts On Drug Trials? Pros And Cons.

Any Thoughts On Drug Trials? Pros And Cons.

I’m getting ready to start drug treatment for CLL after 8 years of wait and watch. I just started with a new oncologist and she is sending me to see about a drug therapy trial. Has anyone had experience with this?

A MyLeukemiaTeam Member said:

My husband started on these same meds 3 years ago.

posted over 1 year ago

Effectiveness Of Vaccine While On Alcalabrutinib. ?

Effectiveness Of Vaccine While On Alcalabrutinib. ?

I'm currently on Alcalabrutinib (Calquence) for CLL. All my bloodwork shows I'm in normal ranges for WBC, RBC, Hemoglobin, as well as other indicators and am considered in remission for 6 months. I've had both Pfizer vaccine shots 60 days ago with no side effects or issues. After an antibodies test 4 weeks after my second shot, my specialist claims my efficacy is 'less than robust' against COVID 19. Test results were: Anti-SARS-CoV-2 Spike Protein IgG Index: 0.02 S/CO std range: 0.00 -… read more

A MyLeukemiaTeam Member said:

When I flew to TX end of July to see kids, my friend at the hospital acquired n95 masks for me so I double masked the whole day, in plane, in airport, say away from people as much as possible, used… read more

posted 3 months ago

Imbruvica Use

Imbruvica Use

I have been on Imbruvica for about 1 month now for CLL. When my WBC count hit 68 in mid March 2020, the doctor put me on it. 2 weeks after starting the drug my WBC count was 95. Today I had another blood test and it is up to 111. I spoke with the oncologist today and he said to not be alarmed and to expect a spike when starting the Imbruvica for the 1st month or 2 (it can double according to him), but after that it should drop dramatically. Has anyone else that is on Imbruvica noticed this… read more

A MyLeukemiaTeam Member said:

Yes my white blood 89,000 then spiked up all the way to over 300,000.. within one month and half....so dnt be alarmed ..then had to get immunotherapy treatments with rituxan once a week before it… read more

posted about 1 year ago

ALL How Deadly Is It For Young Adults?

ALL How Deadly Is It For Young Adults?

Did anyone recently died of ALL in their 20s or early 30’s? Our son was diagnosed 3 years ago, and passed away in May this year after he turned 27 years old. Tried all the best and latest available treatments including several clinical trials at NIH and MD Anderson, CARt, NK cells, stem cell transplant etc.
I hate Leukemia - it’s a horrible cancer

A MyLeukemiaTeam Member said:

I'm so sorry for your loss. Losing his life at such a young age is awful. I was diagnosed with ALL at 30 about a year and a half ago and I'm in remission. I try not to think about it but every so… read more

posted over 1 year ago

Imbruvica

Imbruvica

Is this med chemo

A MyLeukemiaTeam Member said:

My oncologist has not told me anything about it. An advertisment on tv says it is not chemo.

posted 26 days ago

Donor Cells

Donor Cells

I am interested to learn from those who have had a stem cell transplant for AML or any leukemia for that matter. I would like to ask what you percent of donor cells did you have after transplant? How long since your transplant. Anyone who transplant has not cured? Thanks for any information.

A MyLeukemiaTeam Member said:

Or should I just be grateful to make it through the SCT - which was the hardest thing I have ever done. Did not think I was going to make it.

posted 4 months ago