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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Clinical trials"

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Clinical Trials

Clinical Trials

Hi everyone. Being a bit new at all this stuff, I was wondering what type of general situation makes one eligible for a clinical trial. I'm guessing from what I've read you have to be sick enough so they have something to test, correct?

A MyLeukemiaTeam Member said:

Hi Bob .. I am pretty sure you need to meet the
qualifications for the trial. Mine was that way
Each trial is different. For instance they may hold
a trial on "dosage" of a specific BTK inhibitor… read more

posted about 1 year ago

What Should The Next Step Be?

What Should The Next Step Be?

Hello,

While recovering from a massive heart attack in the hospital the doctor's told my partner he has Leukemia. They aren't specialists in that area (cancer, Leukemia, etc.). I wasn't there when they told him and he was still on pain medication, but from what he understood his heart is too damaged to withstand radiation and his heart won't heal or ever work properly because of the Leukemia. They gave him 12 months to live. Does this sound logical? He is 58.

We are setting up an… read more

A MyLeukemiaTeam Member said:

I’m so sorry, I would look for an oncologist/hematologist, cancer/blood doctors. There is so much more than just radiation that can be done
The doctor should have never told him that he only has 12… read more

posted about 1 month ago

Second Opinion Via Telemedicine

Second Opinion Via Telemedicine

I would like to get a second opinion via telemedicine. Does anyone know how is doing this

A MyLeukemiaTeam Member said:

I wanted to do a Clinical Trial but there is none near me here in Orlando. Some Clinical Trials only give you the drug that you’ve been put on not a placebo!

posted over 1 year ago

Is Healing Possible With Calquence? If So, Then Explain Why My Oncologist Says That I'll Be On It For The Rest Of My Life.

Is Healing Possible With Calquence? If So, Then Explain Why My Oncologist Says That I'll Be On It For The Rest Of My Life.

My numbers have progressively gone in the right direction and now are "almost normal". I feel that there are negative aspects to taking Calquence and by staying off it for a period might help, not hinder me...and ,in the process, might eliminate or reduce the side effects. But, I have yet to hear that from Astra Zeneca nor from the pharmacies...who all say that the oncologist needs to weigh in on that decision.

A MyLeukemiaTeam Member said:

Thanks GratefulBarb!

posted about 1 month ago

Any Thoughts On Drug Trials? Pros And Cons.

Any Thoughts On Drug Trials? Pros And Cons.

I’m getting ready to start drug treatment for CLL after 8 years of wait and watch. I just started with a new oncologist and she is sending me to see about a drug therapy trial. Has anyone had experience with this?

A MyLeukemiaTeam Member said:

My husband started on these same meds 3 years ago.

posted about 2 years ago

ALL How Deadly Is It For Young Adults?

ALL How Deadly Is It For Young Adults?

Did anyone recently died of ALL in their 20s or early 30’s? Our son was diagnosed 3 years ago, and passed away in May this year after he turned 27 years old. Tried all the best and latest available treatments including several clinical trials at NIH and MD Anderson, CARt, NK cells, stem cell transplant etc.
I hate Leukemia - it’s a horrible cancer

A MyLeukemiaTeam Member said:

I'm so sorry for your loss. Losing his life at such a young age is awful. I was diagnosed with ALL at 30 about a year and a half ago and I'm in remission. I try not to think about it but every so… read more

posted about 2 years ago

Effectiveness Of Vaccine While On Alcalabrutinib. ?

Effectiveness Of Vaccine While On Alcalabrutinib. ?

I'm currently on Alcalabrutinib (Calquence) for CLL. All my bloodwork shows I'm in normal ranges for WBC, RBC, Hemoglobin, as well as other indicators and am considered in remission for 6 months. I've had both Pfizer vaccine shots 60 days ago with no side effects or issues. After an antibodies test 4 weeks after my second shot, my specialist claims my efficacy is 'less than robust' against COVID 19. Test results were: Anti-SARS-CoV-2 Spike Protein IgG Index: 0.02 S/CO std range: 0.00 -… read more

A MyLeukemiaTeam Member said:

When I flew to TX end of July to see kids, my friend at the hospital acquired n95 masks for me so I double masked the whole day, in plane, in airport, say away from people as much as possible, used… read more

posted 10 months ago

How Well Do Your Doctors Or Other Providers Work Together To Treat Your Leukemia?

How Well Do Your Doctors Or Other Providers Work Together To Treat Your Leukemia?

A MyLeukemiaTeam Member said:

I've seen two now and both left me feeling the same way....too busy to really sit and listen....too much dependence on lab results only with no thought to clinical real life symptoms

posted 2 months ago

CLL. Lots Of Fatigue. On Wait And Watch. Any Suggestions?

CLL. Lots Of Fatigue. On Wait And Watch. Any Suggestions?

A MyLeukemiaTeam Member said:

Watch and wait is good and definitely the time to get yourself in the healthiest status possible That can be applied to your fitness as well as your diet, detox, supplementation and positive attitude… read more

posted 16 days ago