Hi everyone. Being a bit new at all this stuff, I was wondering what type of general situation makes one eligible for a clinical trial. I'm guessing from what I've read you have to be sick enough so they have something to test, correct?
I would like to get a second opinion via telemedicine. Does anyone know how is doing this
While recovering from a massive heart attack in the hospital the doctor's told my partner he has Leukemia. They aren't specialists in that area (cancer, Leukemia, etc.). I wasn't there when they told him and he was still on pain medication, but from what he understood his heart is too damaged to withstand radiation and his heart won't heal or ever work properly because of the Leukemia. They gave him 12 months to live. Does this sound logical? He is 58.
We are setting up an… read more
https://www.mdanderson.org/cancerwise/arizona-w...(Phone number can only be seen by the question and answer creators).html
I have a friend that did clinical trials at MD Anderson in Arizona. I don’t… read more
I’m getting ready to start drug treatment for CLL after 8 years of wait and watch. I just started with a new oncologist and she is sending me to see about a drug therapy trial. Has anyone had experience with this?
I'm currently on Alcalabrutinib (Calquence) for CLL. All my bloodwork shows I'm in normal ranges for WBC, RBC, Hemoglobin, as well as other indicators and am considered in remission for 6 months. I've had both Pfizer vaccine shots 60 days ago with no side effects or issues. After an antibodies test 4 weeks after my second shot, my specialist claims my efficacy is 'less than robust' against COVID 19. Test results were: Anti-SARS-CoV-2 Spike Protein IgG Index: 0.02 S/CO std range: 0.00 -… read more
I have been on Imbruvica for about 1 month now for CLL. When my WBC count hit 68 in mid March 2020, the doctor put me on it. 2 weeks after starting the drug my WBC count was 95. Today I had another blood test and it is up to 111. I spoke with the oncologist today and he said to not be alarmed and to expect a spike when starting the Imbruvica for the 1st month or 2 (it can double according to him), but after that it should drop dramatically. Has anyone else that is on Imbruvica noticed this… read more
Did anyone recently died of ALL in their 20s or early 30’s? Our son was diagnosed 3 years ago, and passed away in May this year after he turned 27 years old. Tried all the best and latest available treatments including several clinical trials at NIH and MD Anderson, CARt, NK cells, stem cell transplant etc.
I hate Leukemia - it’s a horrible cancer
I am interested to learn from those who have had a stem cell transplant for AML or any leukemia for that matter. I would like to ask what you percent of donor cells did you have after transplant? How long since your transplant. Anyone who transplant has not cured? Thanks for any information.