I would like to know if anyone with CML has had trouble with their eyes. I am on sprycel. Before I was n gleevac.
Has anyone taken tasigna? If so what side effects are you having or had and do they ever ease up or disappear. I start this pill next week and I'm scared. I was diagnosed in July 19 with CML and was on sprycel but had so much fluid retention got lots of fluid in my lungs so my doctor took me off of it. I was lucky though in a short time with sprycel my numbers went down to undetected and that was the only side effect. But man what a bad side effect. Feels like your drowning. Any help is… read more
I have been on Sprycel 100mg every day for 6 months after a Gleevec failure. I have noticed lately that anytime my hands/arms/legs/feet are sedentary, even for the smallest amount of time, it feels like they fall asleep and start tingling. Is there anyone else that experiences this? What is it? Side effect of the chemo? I thought perhaps nerve damage but I take nerve pain medication and it still happens.
The VA hosp has run out of Gleevec,.... so my Dr didn't refill my rx! He said it won't effect my long term prognosis! Has anyone else missed a week or so of pills?
Has anyone dyed there hair with a vegetable dye or henna dy and does it work? The doctor says my hair would start to fall out if I used a regular hair color on it and even though they say my chemo isn’t causing my hair loss I don’t want to make it worse because it’s right in the front. I have a gray stripe that really makes it worse so I was just wondering. Also I’m on Bosulif 400 mg.
Anyone experience acid reflux while taking leukemia meds? Dr said I cannot take any of the meds available to treat it because they decrease the acid needed to absorb the leukemia drug. anyone have any treatment that helps?
So the past couple of years have been great. I have been lifting weights working out been happy go lucky but the past couple of months I have started to feel fatigued and irritable. I can still doy job but I'm tired a lot of the time. I guess my question is..... Is there anyone else with the same problems? Does your fatigue come and go. It's getting to the point where my brother asks why are you always in a bad mood?. Can anyone relate? I'm I crazy or in vitcomstance or could it be my meds. My… read more
Hi Does anyone one have extreme muscle soreness while taking Tasinga. I have CML and I am on Tasinga been on it since Dec 14 2018... However my Biceps and Shoulders hurt me on a daily bases. I am afraid I am going to loose strength in my arms if I am not careful.
I would like to know what symptoms you are experiencing and what, if any, treatment you are undergoing.
I was told it's incurable and now they're saying since the leukemia hasn't been showing in my blood tests for two years that they can take me off chemo pill (sprycel) and just check me to see if it comes back. Anyone else do this and what happened? I'm truly scared to go off. Help anyone?