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Yes three months after my annual eye exam, which was fine with no change in prescription that I’ve had for 15 years, I noticed blurring. Made An appt for fundoscopy. It’s showed after 3 months on Spry… read more
Has anyone taken tasigna? If so what side effects are you having or had and do they ever ease up or disappear. I start this pill next week and I'm scared. I was diagnosed in July 19 with CML and was on sprycel but had so much fluid retention got lots of fluid in my lungs so my doctor took me off of it. I was lucky though in a short time with sprycel my numbers went down to undetected and that was the only side effect. But man what a bad side effect. Feels like your drowning. Any help is… read more
I have been on Sprycel 100mg every day for 6 months after a Gleevec failure. I have noticed lately that anytime my hands/arms/legs/feet are sedentary, even for the smallest amount of time, it feels like they fall asleep and start tingling. Is there anyone else that experiences this? What is it? Side effect of the chemo? I thought perhaps nerve damage but I take nerve pain medication and it still happens.
I started showing side effects with Bosutinib when VA Doctor told me to double dose to 2 100mg tablets a day June of 2020. I previously had taken Sprycel when I was first diagnosed 4 years ago. In… read more
Hi Does anyone one have extreme muscle soreness while taking Tasinga. I have CML and I am on Tasinga been on it since Dec 14 2018... However my Biceps and Shoulders hurt me on a daily bases. I am afraid I am going to loose strength in my arms if I am not careful.
I was told it's incurable and now they're saying since the leukemia hasn't been showing in my blood tests for two years that they can take me off chemo pill (sprycel) and just check me to see if it comes back. Anyone else do this and what happened? I'm truly scared to go off. Help anyone?
Anyone experience acid reflux while taking leukemia meds? Dr said I cannot take any of the meds available to treat it because they decrease the acid needed to absorb the leukemia drug. anyone have any treatment that helps?
My specialist said to take the vaccine. I have not as yet bothered simply because they keep running out of it and scheduling is crazy. I don't feel I need to be in a hurry so I am waiting until it… read more
I was diagnosed with CMML-0 in Feb of 2017. I continue to be on "Watch and Wait." In fact, I saw my hema/onco doctor last week and he had an assistant Dr with him. The assistant Dr told me that… read more
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