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Top 10 Search Results for "Venclexta"

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Learning About CLL

Learning About CLL

I'm 51. My WBC is 63,000 my Lymphocytes are 54. When does treatment usually start. Why not treat now instead of waiting till it progresses. Very Confusing. Thx

A MyLeukemiaTeam Member said:

My oncologist would start treatment when my white count was at 50,000. The retuxin drip worked for years. But in March it didn't work as well so oncologist called for genetic blood testing and put me… read more

posted 6 months ago

Venclexta

Venclexta

i am takeing 400 mg of venclexta each moring i have joint pain what is the best treatment in controlling the joint pain i have try every anti infam body rub it effect every part of my body mainly in the knees my doc has put me on 10mg oxcon an i take tylenol what else can i do to help to reduce the joint pain as i have 18 more month of takeing the venclexta i also have 3 more months of retucken i have been in treatment since 2019 i had my spleen removed it was the largest one ever removed… read more

A MyLeukemiaTeam Member said:

I'm taking Venclexta, 200 mg now. When I was on starter PKG and taking 400 mg my legs ached
So I rubbed them with CBD oil and walked. Pain would go away. Now, on 200 I don't have aches or pains. Thank… read more

posted 6 months ago

Venclexta

Venclexta

Does anyone’s urine smell weird from taking Venclexta - or maybe from the Allopurinol that helps break it down?

A MyLeukemiaTeam Member said:

Thank you!

posted 9 months ago

Venclexta

Venclexta

I was having good luck with Imbruvica . I still don’t know why I was switched to Venclexta. So my question is , what is the difference between the two medicines ?

A MyLeukemiaTeam Member said:

The Venclexta is working fine , absolutely no side affects. My original Dr ( he just retired )!was leaning towards getting off it ( remission ) after a year. I switched to Dana Farber and they… read more

posted about 1 year ago

I Was Just Diagnosed With AML And Would Like To Know What To Expect

I Was Just Diagnosed With AML And Would Like To Know What To Expect

I have very low white blood & platelet cells and would like to hear from people that have this with AML

A MyLeukemiaTeam Member said:

My husband has it

posted 4 months ago

Has Anyone Been Treated With Midostaurin As An Inhibitor During Remission Of AML?

Has Anyone Been Treated With Midostaurin As An Inhibitor During Remission Of AML?

A MyLeukemiaTeam Member said:

I was diagnosed w AML March 2019. Stem cell transplant Sept 2019 i have been on Rydapt since March 2019. Unfortunately i came out of remission July 2019 so doctor discontinued Rydapt as is no longer… read more

posted about 1 year ago

Life Expectancy?

Life Expectancy?

When I asked my oncologist how aml changed my life expectancy, she said she didn't want me to have negative thoughts so she didn't want to answer the question. So, I did some research and learned the average is 5 years. Talk to me about this! Please

A MyLeukemiaTeam Member said:

I am on my 6th year and still going strong. I forget I have it. Live your life. Enjoy.

posted 5 months ago

CLL Treatment And Residual Neuropathy

CLL Treatment And Residual Neuropathy

Hello,

My girlfriend, 64, is a previous leukemia patient and survivor. She also has some neurological issues that affect her memory. This, coupled with the fact that she was also very sick with leukemia, makes it difficult for her to recall some of the details of the time span in which she was sick.

My girlfriend gets exhausted quickly, which we attribute in part to her past illness, but she also has a lingering neuropathy problem.

She thinks that she was taking a drug by the name of… read more

A MyLeukemiaTeam Member said:

Hang in there. I would like for you to think About finding a good oncologist. I have cll and retuxin drips for four Mondays in March. Didn't work as well as it did so oncologist called for genetic… read more

posted 8 months ago