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I Have A Dual Diagnosis Of MDS And Hereditary Hemochromotosis. Any One Else? Looking For Some Answers. Thanks

I Have A Dual Diagnosis Of MDS And Hereditary Hemochromotosis. Any One Else? Looking For Some Answers. Thanks

A MyLeukemiaTeam Member said:

I want to tell everyone about a possible therapy for chronic lymphocyte leukemia. My oncologist knew I was not interested in chemotherapy so he gave me a paper telling about Neem leaf extract inducing cell death by apoptosis in chronic lymphocytic leukemia cells. I ordered some from iherb.com and have been taking it since December 24th. The oncologist did not give me any instructions as to the dosage so I have been taking half of the eye dropper full every day 3 times a day. It is bitter so I mix it with about half of a small cup of water. I don't see him again until April but meanwhile I have noticed the lymph nodes on my neck that I can feel are starting to decrease. Your doctor probably won't approve this because of course they get a portion of the chemotherapy cost. My white blood cell count was around 22,000 and so those in the earlier stages of Leukemia might be interested in this.

posted over 2 years ago
A MyLeukemiaTeam Member said:

My 83 yr old half- brother was diagnosed 20 yrs ago with MDS w/o anemia. His numbers have remained consistent over the years so he has not required treatment. I have CLL. My son was diagnosed 5 years ago with polycythemia (not vera). I've wondered about getting genetic testing done. I had mine done through Ancestry for identifying relatives.

posted over 2 years ago
A MyLeukemiaTeam Member said:

I have Myelodysplasia aka Myelodysplastic Syndrome aka MDS. Thank you for your reply Wes, but wanted to clarify for you that I do not have MS. My leukemia does not allow my red blood cells to grow to maturity in my bone marrow hence I'm also anemic. I also have iron overload in my blood, spleen, and liver from hereditary hemochromatosis. Bone marrow biopsy revealed the MDS and Genetic testing the hemochromatosis. My Hematologist/Oncologist. tells me I'm medically complex. I posed my question because I have yet to find any one else with this dual diagnosis. Thank you for taking the time to correspond to my question.

posted over 2 years ago
A MyLeukemiaTeam Member said:

I have been tested for MS, negative. The spinal for that was a tough one. I have an Aunt and cousin with MS.

posted over 2 years ago
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