I Have A Dual Diagnosis Of MDS And Hereditary Hemochromotosis. Any One Else? Looking For Some Answers. Thanks
I Have A Dual Diagnosis Of MDS And Hereditary Hemochromotosis. Any One Else? Looking For Some Answers. Thanks
I want to tell everyone about a possible therapy for chronic lymphocyte leukemia. My oncologist knew I was not interested in chemotherapy so he gave me a paper telling about Neem leaf extract inducing cell death by apoptosis in chronic lymphocytic leukemia cells. I ordered some from iherb.com and have been taking it since December 24th. The oncologist did not give me any instructions as to the dosage so I have been taking half of the eye dropper full every day 3 times a day. It is bitter so I mix it with about half of a small cup of water. I don't see him again until April but meanwhile I have noticed the lymph nodes on my neck that I can feel are starting to decrease. Your doctor probably won't approve this because of course they get a portion of the chemotherapy cost. My white blood cell count was around 22,000 and so those in the earlier stages of Leukemia might be interested in this.
My 83 yr old half- brother was diagnosed 20 yrs ago with MDS w/o anemia. His numbers have remained consistent over the years so he has not required treatment. I have CLL. My son was diagnosed 5 years ago with polycythemia (not vera). I've wondered about getting genetic testing done. I had mine done through Ancestry for identifying relatives.
I have Myelodysplasia aka Myelodysplastic Syndrome aka MDS. Thank you for your reply Wes, but wanted to clarify for you that I do not have MS. My leukemia does not allow my red blood cells to grow to maturity in my bone marrow hence I'm also anemic. I also have iron overload in my blood, spleen, and liver from hereditary hemochromatosis. Bone marrow biopsy revealed the MDS and Genetic testing the hemochromatosis. My Hematologist/Oncologist. tells me I'm medically complex. I posed my question because I have yet to find any one else with this dual diagnosis. Thank you for taking the time to correspond to my question.
