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My question is , my absolute count of lymphocytes is 50 but all of a sudden my monocytes have jumped through the roof and they’re 25 at this

A MyLeukemiaTeam Member asked a question 💭
Toledo, OH

Has anyone else experienced this? My oncologist is worried that I have two types of leukemia.

April 5
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A MyLeukemiaTeam Member

I have CMML w tendancy to MDS. High Monocytes are a indicator of possible CMML. Good to see another evaluation. But yes very very rare.

April 5
A MyLeukemiaTeam Member

Typically infection or number of other reasons could cause this change. Did your doctor do another bone marrow test? It could be a different phase in your current diagnosis. What are your BCR-ABL results, did they change? I'd call the office tomorrow speak with the nurse regarding your concerns or ask for a phone consultation with the doctor. If they can't give you answers or you're not comfortable with the care you're receiving; i'd get a second opinion. Regards

April 5
A MyLeukemiaTeam Member

My oncologist here said I have two different types MDS and CMML. Told me it’s rare so I’m going to Moffitt on Wednesday . I’m happy that he suggested Moffitt second opinions are good.

April 5
A MyLeukemiaTeam Member

I am so sorry. THis sounds a bit scary. Here's to your getting some good answers. I'll be thinking of you.

April 28
MyLeukemiaTeam

Has anyone else experienced a sudden jump in monocytes while having leukemia?

It's understandable that you're concerned about these changes in your blood counts. A MyLeukemiaTeam member shared similar experiences with fluctuating white blood cell counts during their leukemia journey.

High monocyte levels can occur in Show Full Answer

Has anyone else experienced a sudden jump in monocytes while having leukemia?

It's understandable that you're concerned about these changes in your blood counts. A MyLeukemiaTeam member shared similar experiences with fluctuating white blood cell counts during their leukemia journey.

High monocyte levels can occur in certain types of leukemia, particularly chronic myelomonocytic leukemia (CMML) and acute myelomonocytic leukemia. In these conditions, monocytes don't function properly and can crowd out healthy blood cells.

Normally, monocytes make up 2 percent to 8 percent of white blood cells. When monocyte levels are elevated significantly, it can indicate specific leukemia subtypes or changes in disease progression.

Your oncologist's concern about potentially having two types of leukemia is something they'll investigate through additional testing. Sometimes CMML can progress to acute myeloid leukemia, which is why monitoring these changes is so important.

The good news is that identifying these patterns helps doctors determine the most appropriate treatment approach. Blood count changes like yours guide treatment decisions and help oncologists understand how the disease is behaving.

Keep communicating openly with your oncologist about these results and any symptoms you're experiencing.

April 5

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