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I am wondering if anyone with a diagnosis of CLL has been told that their CLL affects their T-cells, not the usual B-cells. I'm trying to determine how common or uncommon my particular diagnosis is? My CLL affects my T-cells. I was diagnosed in Dec 2017. My doctor has adopted a "watch & wait" treatment.
Also in the same place as you.
The doctor I had chose the same watch & wait. Well thanks to her i ended up worse off. I now have cll and non hodgrkins lymphoma. I am now on chemo treatments not cureable. I suffer everyday. The doctor I have now, jumped on it immediately. He said I should have started treatments 6 months ago. I feel very angry and disappointed. I trusted her.
Beverly,
I was diagnosed with TPLL, T-cell prolymphocytic leukemia, last November. At first, they thought CLL until my bone marrow biopsy confirmed certain findings consistent with TPLL only. Hoping you get the answers you need as that will determine your treatment. Sending hugs. 😊
My doctor has said the same watch and wait 🤔
Are you sure it’s CLL and not Large Granular Lymphocytic Leukemia? It affects the T cells. Extremely rare. Lucky me. Ask your doc or get second opinion if you have ?’s.
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