Thank you so much and I do have the portal but just started making my own google docs to help. I am blessed with good doctors and insurance but sometimes you know your body better than they do. You just need to figure out what works to help you feel better.
It’s hard not feeling well daily but since my levels aren’t as bad as they need to be for treatment, I’m just not sure what to do with my symptoms. Then I think, how will I feel when my levels really drop? I’m worried but trying to stay positive. I know everyone is affected differently with CLL.
Thank you for your advice and support!

I'm in my 8th year since diagnosis. Currently I take a daily Chemo pill. All my tests show I'm doing great, but my feelings don't reflect same. Recently my oncologist arranged a nuclear petscan to look deeper into my diagnosis. That will be in 3 weeks.
I don't feel sick just lousy. But I make sure to express gratitude for each day that dawns. That along with unwavering family support keeps me going stress-free🙏🏾💞

Yes, I have days like you describe. Feeling like I have the flu with pain and body aches. It is not in your head.I lie down and try to rest and pray and ask for the lords help. GodBless you ,Joanel

Hi Ken, yes for sure! Lots of junk going around.
Please stay healthy!
All the best!