I have not told my family about my CLL diagnosis and I am not sure I need to, what have others done and how/when did you decide to tell them
If you decided to tell them how much did you share, if you didn't tell them how did you come to that decison
I am only in the very beginning stages of CLL and I don't want cause alarm or worry them and I don't want attention either because I don't need it and it may be years before I need treatment. My thought is, why worry my family now? I am let them… read more
Answer Summary
Members shared a wide range of personal experiences on whether and how to tell family about a CLL diagnosis, with many leaning toward openness... Read more
Challis,
My daughter took me to my first appt with the Oncologist, so she heard it for the first time, with me, from the doctor. My kids had to know. I called my fiancé as soon as we left the building. Then, I told my 5 siblings by phone. Then, my daughter sent a group email to extended family and good friends. She sent updates to the group throughout my first years' journey. I ended up with a very large, and loving support group. I didn't want to go it alone. But that's just me. I wish you the best, whatever your decision may be. Do what feels right for you.
Hmmm ... I see your dilemma. My situation was very different. I was very advanced in my CLL when diagnosed. I had already outlived my family. I was supposed to die within a month or two. So I called up all my friends and gave everything I owned away except for my TV, computer, car, cat, and mattress I slept on. The mattress was on the floor by the way. Then life played it's funny little trick. I lived. ROFL! I started going to thrift stores to regroup. 😊 I was happy that I'd given to everyone the things I wanted them to have. But I was straightforward about the cancer. That's been years ago now, and I'm currently in remission. With a house full of thrift store artifacts. 😂
I was transparent with everyone in my family, I also gave them the truth exactly what I knew about CLL and encouraged them if they wanted to seek their own information. I tried not to be over dramatic about the "C" word. Assure them it's not the end it is slow growing, and there are lots of treatment options. Hope that helps.
I was diagnosed in Sept 2023. I came right out and told family but buffered it with the fact CLL is generally slow growing. I have told friends, neighbors, people in our church. For me I find it comforting having a large support group.
I just came right out and told them, I was more worried about my kids since They have already lost their Mother in 2020, But They are ok since I told them I am ok