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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
Brooksville, FL

Diagnosed with stage four CLL in February 2020 all my blood work is in the normal range, but I still feel really tired most of the time and have shortness of breath. Is this something I will have to endure for the rest of my life?

July 16, 2023
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A MyLeukemiaTeam Member

Thanks for responding Paul, I have a cardiology appointment in about two weeks. Hopefully they will get to the bottom of the shortness of breath. I sleep with a CPAP, which registers all the hours that I sleep and it’s usually about 11 to 12 hours including an afternoon nap here in there. I again Paul thank you for responding and and best of luck on this journey.

July 21, 2023
A MyLeukemiaTeam Member

It's hard to ask other leukemia patients specific questions because everybody's situations are different.

November 5, 2023
A MyLeukemiaTeam Member

Hi Ed,
Maybe, maybe not. Shortness of breath sounds more like heart, talk to heart doctor. Have you had a recent echocardiogram? The tiredness, well I sleep 11-12 hours, no nap and not tired. Sit and rest then continue with you activity. I was diagnosed CLL at about same time as you.

July 16, 2023
MyLeukemiaTeam

Shortness of breath and fatigue can still occur in people with leukemia, even while in remission. Here are some potential causes:

- Anemia: Low levels of red blood cells can lead to shortness of breath and fatigue
- Treatment Side Effects: Chemotherapy, targeted therapy, or radiation can cause these symptoms.
- Other Show Full Answer

Shortness of breath and fatigue can still occur in people with leukemia, even while in remission. Here are some potential causes:

- Anemia: Low levels of red blood cells can lead to shortness of breath and fatigue.
- Treatment Side Effects: Chemotherapy, targeted therapy, or radiation can cause these symptoms.
- Other Health Conditions: Conditions like lung infections, low blood pressure, heart disease, or anxiety can also contribute.

Always discuss these symptoms with your doctor to determine the exact cause and appropriate management.

July 10, 2024
A MyLeukemiaTeam Member

Agree!

November 5, 2023

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