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A MyLeukemiaTeam Member asked a question 💭
Toledo, OH

I’d like to hear what you know from those that have an 11q deletion

September 1, 2023
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A MyLeukemiaTeam Member

Thank you, I’m really trying to get to that point

September 2, 2023
A MyLeukemiaTeam Member

I found this on the internet What is 11q deletion in CLL?
11q deletions identify a new clinical subset of B-CLL characterized by extensive lymph node involvement. In younger B-CLL patients, this aberration is an important predictor of survival.
What is the life expectancy of someone with CLL 11q deletion?
It Takes a Village to Turn a Victim into a Survivor - CLL Society
I discovered epidemiology studies from the late 1990s indicated that the median life expectancy of patients with CLL with 11q deletion was between five and six years, with the luckiest patients getting around 10 years post-diagnosis.

September 4, 2023
A MyLeukemiaTeam Member

It went like this in 2015. Sleep study showed sleep apnea. Also indicated heart issues. Numerous heart tests indicated heart disease and failure. Had a pacemaker implanted. Lymph nodes were enlarged. Had a lymph node biopsy and bone marrow test, then was diagnosed with C)L. Watch and wait for two years, then got hammered and went on Imbruvica. I think the Imbruvica caused my heart to deteriorate. I think Aleve and Advil (nsaids) caused my CLL to flair up. So now I'm pretty pleased to be where I am.

I visit my cardiologist once a year for an echo, and every six months for a consult. I see my oncologist every three months for a blood test and consult. Cardiologist gets a copy of the blood test every three months.

I'm a busy guy. I try to stay upbeat. It must working because I get no support from family and friends. It all comes from my fellow survivors at my exercise class at the Y. And from friends like you on this site.

There's a French and Indian War re-enactment at Heritage Hill today. I might go check it out if it's not too hot.

Thanks for your help, Soldier!

September 3, 2023
A MyLeukemiaTeam Member

DenisRolain I’m starting to realize that. Did you have any cardiac issues before Leukemia or before Imbruvica

September 2, 2023
A MyLeukemiaTeam Member

Thank you Denis. I’m 69 and just 9 months into CLL.

September 2, 2023

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