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It's like clockwork... 10 am I feel like someone pulled the plug. After a good nap, I'm good for most of the day, like someone plugged me back in. Then usually at 7 pm, some dirty rascal pulled the plug again.

January 9, 2024
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Answer Summary

Members shared remarkably consistent patterns of daily fatigue, with many describing a predictable energy crash between 10 a.m. and 2 p.m.,... Read more

Members shared remarkably consistent patterns of daily fatigue, with many describing a predictable energy crash between 10 a.m. and 2 p.m., followed by a second wave of exhaustion in the early evening, regardless of whether they were actively in treatment, in remission, or on watch and wait. Several members offered practical strategies that have helped them manage these patterns, including avoiding carbs at breakfast in favor of protein, taking strategic power naps, drinking coffee throughout the day, forcing themselves to stay active even when tired, and investigating underlying causes like sleep apnea or heart issues. A recurring theme was the frustration of feeling exhausted without a clear explanation, the challenge of poor nighttime sleep due to pain or restlessness, and the shared understanding that fatigue is a persistent reality of living with cancer, met with encouragement to keep moving forward and find what works best for each individual.

A MyLeukemiaTeam Member

feeling you. I have terrible sleep habits and no longer fit in with the rest of the "normal" world. But sleeping 12 hours a night and waking up tired doesn't help. I keep thinking if I only I could get on track with meds I could readjust but the meds fight me to. You are correct, you have to keep punching - until I guess you get knocked out. Thanks for sharing and opening us up!

January 12, 2024
A MyLeukemiaTeam Member

About 2:00 in the afternoon I am ready to quit for the day. Also about 6:30 I could really call it a day!

January 12, 2024
A MyLeukemiaTeam Member

Ya, I have been having sleepless nights lately. Just ordered some max strength sleep aid tablets. Hope I have luck with them.

January 10, 2024
A MyLeukemiaTeam Member

You have your infusions eight days in a row.... interesting, I had mine once a month for ten months. Praying you have favorable results.

January 9, 2024
A MyLeukemiaTeam Member

I get fatigued around 1pm and will occasionally give in and take a nap, and have another cup of coffee. I have a spine neurostimulator that needs daily charging, so I go to bed around 8:30-9:00 as it takes an hour to charge.

January 16, 2024

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San Francisco, CA