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I have been on IVIg now for at least four years having treatment once a month, this being post chemotherapy. Was told that this will go on for the rest of my life
My IVG is like a waves which is up and down, if I stop treatment my immune system becomes weak and I end up getting pneumonia or chest infections, IVG levels diminish
My IVM 0.06 and IVA is 0.13 which are well below the level .
Wondering if others who have been having the same treatment have side effects and how long have you been… read more
When I am finished with my hour at the gym I have enough energy to make it to the shower. By the time I showered & dressed I have recovered? My 10 mile drive home ony gives me more time to relax. I do nothing during the day because I have fulfilled my day activity.
Jo that seems to be the answer to a lot of issues when speaking to the haematologist, I too like you have been suffering fatigue now since starting chemotherapy and IVIG (over 5 years) When bringing this to the attention of my haematologist I’m told to exercise more , I walk 4- 5 ks 3 times a week , I ride a bike for six ks when weather permits. So get plenty of exercise only to be worse for fatigue and pay for it dearly. I feel the haematologist is like a car dealer, he has sold the car and not interested in the issues , just like I have had chemotherapy and now I wipe my hands of you.
Thanks for sharing. I'd never heard of this. Unfortunately my Oncologist is very good at not looking ahead. Unless he's offering "death with dignity" that is :(
What a journey you've been on — four years of monthly IVIG infusions post-chemotherapy is no small thing, and your experience is something many others on MyLeukemiaTeam can relate to.
IVIG (like Privigen) is commonly used after chemotherapy when the immune system can no longer produce enough antibodies on its own. The Show Full Answer
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