I read that most doctors use the practice of "wait & watch?" I think you time of wait & watch should change to "share & care" which means sharing some ways to resolve your illness and care about your health. I did not want to wait until my body had organ damage before requesting medication. Medication can "control" the infection but if the cells mutate then the control ends. The good news is there are many types of medication, but I think all medications are very expensive? My medication is $15500 per/mth which a grant from Leukemia Society paid the co-pay $3400. After 3 months my insurance covered 100% of the cost. Currently there is no cure but there are many medications which can control the illness. My WBC count was 75K and today it is 6.9K. Before my medication I would write down questions so I could learn more about this illness. My doctor only discussed a few questions? I do not think he knew as much as I had learned? My medication uses the "BTK Inhibitor" to attack to the bad cells and inactive the cells. In a few years the newest medication will use the "BCL2" process to attack the bad cells mitochondria. The good thing about this medications is they do not attack the body's organs or good cells. I am glad I had visited the gym 3 time a week before becoming ill. I think my reporting to the doctor that I was still active at the gym affected his doctoring habit of taking care of my health. In the past I was a jogger and now I do not like seeing the greenish bruising on my legs after a run. I have good energy in the morning and relax in the afternoon. My wife has a very good background with nutrition and we eat very healthy. Today I eat almost twice the amount of food I had eaten before infected but now the foods are very healthy. I hope your research provides you good information so you can make healthy choices with your future health and happiness.

Hi Nancy. As everyone has already mentioned, we all have lymph nodes through our body. After loosing weight, my neck looked weird and mentioned this to my my hematologist and he ordered a CT of the soft tissue in the neck. Lymph nodes were present on the thyroid but nothing abnormal was reported. A month later I saw my ENT ~ hematology had referred in the fall of 2022 because of constant upper respiratory crap. I see ENT at UNC every 6 months. Since UNC has MyChart, she could see the photos. She ordered an ultrasound with possible biopsy of the thyroid. Four nodules were present and two were within normal size range. One was on borderline size. The fourth one was over the acceptable size range and was biopsied. Report came by negative. That was in 2023 and radiologist wants to check once a year. The ultrasound in July 2024 was okay with only a little change and no biopsy was done. The ultrasound for 2025 is already scheduled. It is important not to be shy to ask and confront your provider(s). They do not know your body and you need to understand. My parents were of the generation that thought doctors "walked on water". If my mother had gotten a second opinion she might have lived another 10 years. Now everyone in this group understands why I say question your providers. Take care

I used to call them “worry nodes”. Call your doctor, could be an infection.

Heat really helps my rice sock I heat in microwave for 2 minutes and it really helps to get them moving

I would not think it to be a good symptom. I hope you inform your oncologist. Sounds like some kind of infection.