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March 19, 2025
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A MyLeukemiaTeam Member

Thank you for that. My vitamin D is fine. I’ll try b-12 shots, just confusing when red cells show B-12 deficiency but B-12 on labs is high… ? I don't take iron or eat red meat yet my ferritin is high?

March 25, 2025
A MyLeukemiaTeam Member

Hi GLake. I honestly do not know if leukemia affects how we absorb vitamins, etc. I do know that having gut issues (Crohns, IBS, etc) that those rob our body of important nutrients. I've had Crohns for 30 yrs, do not take drugs for it, and have kept it under control with various life style changes. But, I occasionally will have a flare up that last for days. I start taking trace minerals as I become deficient in selenium, copper, magnesium, etc. I did have slight B12 deficiency a few years ago and after 1 shot of B12 it bounced back to normal and has been fine ever since. I am Vitamin D3 deficient and do take D3 w/K2 tincture daily. Have they checked your Vita D level? I noticed within a month a slight increase in my energy after starting the Vit D. I've had CLL for 8 plus years and thankfully no treatment, but the fatigue has been and still is my daily challenge. After ruling out all other things that can produce fatigue (dehydration, iron, thyroid, sleep deprivation, etc etc) I've just accepted that having the fatigue is part of the blood cancer. Wouldn't hurt one bit for you to have another opinion in regards to the B12. So maybe find another doctor to see what they say?

March 24, 2025
MyLeukemiaTeam

When leukemia affects the bone marrow, it can crowd out healthy cells and reduce red blood cell production, leading to anemia. While iron levels may be fine, anemia in leukemia patients can also be related to vitamin B12 or folic acid deficiencies. Treatment options are typically based on the underlying cause and severity Show Full Answer

When leukemia affects the bone marrow, it can crowd out healthy cells and reduce red blood cell production, leading to anemia. While iron levels may be fine, anemia in leukemia patients can also be related to vitamin B12 or folic acid deficiencies. Treatment options are typically based on the underlying cause and severity of symptoms. Specialists may recommend different treatments depending on severity. For mild cases, nutritional supplements like vitamin B12 (via pills or injections) or folic acid may help. Some patients report improvement with doctor-prescribed supplements. However, in more severe cases where supplements aren't effective enough, blood transfusions might be necessary. Always consult with your healthcare team before starting any supplements, as they'll need to determine the most appropriate treatment based on your specific situation.

March 19, 2025
A MyLeukemiaTeam Member

My red blood cells show B-12/folic acid deficiency but labs say my B-12 is high at 2000? I have every symptom of B-12 deficiency. RBC’s show it , but due to high labs for it I was told not to take B-12? One doctor said to try it , the other said not to. I want my energy back and B-12 deficiency symptoms to dissipate. I even had cracks show up in the corner of my mouth…hair loss, fatigue, neuropathy, etc. I’ve always taken vitamins, always ate healthy, slim weight. Cant do what I did before. I was also surprised to learn I was deficient in C, selenium, and niacin. Can leukemia make vitamins or nutrients in our food ineffective?

March 24, 2025

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