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A MyLeukemiaTeam Member asked a question 💭
Dayton, OH
June 28, 2025
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A MyLeukemiaTeam Member

Thanks for sharing your insight with ill affects from treatments and getting better? The "brain fog" is something I had not heard of 1/2 years ago though I do remember having some strange situations which occurred when I thought I was not ill? Now I am aware that occationally I will realize I am on remote control and I take back control of my mind. It is like day dreaming but happening at strange times.

July 3, 2025
A MyLeukemiaTeam Member

The brain fog can be frustrating and in a weird way amusing. I've caught myself doing some silly things like trying to put on a tshirt like I was putting on pants. Cognitive issues and motor skills can be debilitating, hence the tricycle rather than a two wheeled bike. My brain and nervous system are slow to process. But oddly enough, I'm healthier than expected because o better eating habits and resting properly.
I know I get to much sun while I spend time in my gardens, but sometimes serenity and solace is worth it.

Like Freddi Mercury sang, "Who wants to live forever".

July 3, 2025
A MyLeukemiaTeam Member

You are amazing to have survived to ride again? I am glad to never have gone through chemo. I think the choice of medication may be just as bad with some strange ill affects (high blood pressure, brain fog, etc.) I hope you are getting your miles in and watch out for sun exposure.

July 1, 2025
A MyLeukemiaTeam Member

I have learned that chemo and it's various types, is a matter of.... which is the lesser of two evils. When I finally agreed to do chemo treatments, I was more close to death than I had realized or care to admit. Six days in the hospital till they could get my blood labs to a point they could safely release me. And then wound up going back because my hemoglobin levels still weren't increasing to the doctors satisfaction. After weekly blood labs fir about two months, and several infusion treatments, my blood labs finally were in the favorable range.
Unfortunately, my second to last infusion treatment conflicted with a severe sinus infection and the medication prescribed. Next thing I know, I'm in a wheelchair for six months with a messed up nervous system and cognitive issues. I still struggle with some of the effects, but it's the lesser of two evils. I was near death two years ago... I had a nurse hold on to me so I could stand up and take a piss...
Now.... here I am.

July 1, 2025
A MyLeukemiaTeam Member

I personally thik the toxic affects of chemo were known to cause cancer in the 70's. I do not think the toxic ill affects were removed from the chemo in the 21st century? I do not think BMT caused ill affects? I think the medical people should explain all the affects of their treatment or medicines so that everyone is aware and can work together as a team.

June 29, 2025

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