Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 13, 2025
 · 
Reactions
A MyLeukemiaTeam Member

Hi Dana. Could the TKI also be causing your headaches and high blood pressure? I know nothing about TKI and its side effects. Would definitely contact your doctor on Monday to make them aware of what is going on and all of your symptoms.
Thank you for the info in regard to Brunswick. So glad that they finally upgraded the town & it is doing well:):)

November 15, 2025
A MyLeukemiaTeam Member

The warmest part of our body is the head. Even on cold nights our head makes our pillow very warm. I think after you get up you cool off and the swelling goes down? If you are taking medication this could be an ill affect? The only way you would know is to stop taking the medication. Last February I started to cough. After 7 months I stopped taking my medication. The cough stopped. I am taking my BTKi now at 50% dose and no cough. I read my paperwork with my last bottle of pills and cough is now listed?

November 18, 2025
A MyLeukemiaTeam Member

Things in Brunswick are good. The city did a beautification a couple of years ago and the downtown looks good and is very active. So two new symptoms. Headaches and wow is all I can say. Blood pressure tonight was 181 over 95. Of course it's Saturday. I hate the ed. Ughhh

November 15, 2025
MyLeukemiaTeam

Why does facial swelling occur in the morning with TKI treatment?

Facial swelling that improves throughout the day is a known side effect of TKI medications used to treat CML. Fluid buildup is one of the common side effects people experience while taking these targeted therapies.

The swelling you're noticing in the Show Full Answer

Why does facial swelling occur in the morning with TKI treatment?

Facial swelling that improves throughout the day is a known side effect of TKI medications used to treat CML. Fluid buildup is one of the common side effects people experience while taking these targeted therapies.

The swelling you're noticing in the morning likely happens because when you're lying down during sleep, fluid can accumulate in your face and around your eyes. As you move around during the day, gravity helps redistribute that fluid, which is why the swelling goes down.

While this can be uncomfortable, it's important to let your healthcare team know about this symptom. They can help determine if:

* The swelling is within expected side effects
* Your current TKI dose needs adjustment
* You might benefit from a different TKI
* Additional medications could help manage the fluid retention

Don't stop taking your TKI without talking to your doctor first, as staying consistent with treatment is crucial for keeping your CML controlled. Your oncology team can work with you to find ways to minimize this side effect while keeping your leukemia in check.

November 13, 2025
A MyLeukemiaTeam Member

Welcome to a great support team Dana:) Article above is very informative. Hope it put your mind at ease some. How are things in Brunswick? I lived in St Marys for 3 plus yrs and miss it so very much.

November 13, 2025

Related Questions

View All
A MyLeukemiaTeam Member asked a question 💭
Dallas, TX

A MyLeukemiaTeam Member asked a question 💭
Dallas, TX

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In